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Diagnosis

So today I got my first high 24hr urine cortisol! All of my salivary tests were abnormally low, which my doctor is very interested in. I heard someone say "You have Cushing's" for the first time! Very exciting to know that I AM NOT CRAZY and all of this is real. The next step is going to be to do a few more 24 hour urine tests. Once those come back high again (fingers crossed) I will have a Petrosal Sinus Sampling, where they will insert a catheter from my leg up to my pituitary gland to determine that the Cushing's is being caused by the tumor there. If all goes well with that, I will have surgery! Hopefully by the end of the year this will be over and I will be cured.

Comments

  1. It's amazing reading your posts! i am super nervous, i have two appointments in august, just after my 21st birthday. I've been having symptoms since about 17 years old and I'm finally seeing a specialist.. :) I'm almost entirely sure I have cushing's.. We'll see. Either way, thanks for blogging and I am really happy for you, you're uber brave and strong!! :)

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