So today I got my first high 24hr urine cortisol! All of my salivary tests were abnormally low, which my doctor is very interested in. I heard someone say "You have Cushing's" for the first time! Very exciting to know that I AM NOT CRAZY and all of this is real. The next step is going to be to do a few more 24 hour urine tests. Once those come back high again (fingers crossed) I will have a Petrosal Sinus Sampling, where they will insert a catheter from my leg up to my pituitary gland to determine that the Cushing's is being caused by the tumor there. If all goes well with that, I will have surgery! Hopefully by the end of the year this will be over and I will be cured.
I haven't updated this blog in a very long time. I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood. Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post. To start - let's go back to June 2018. My grandmother died. She lived a wonderful long life, but it was especially hard on me. She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer. In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself. Yeah, you read that right. The day after re