Skip to main content

Surgery #2?

Today I saw my neuroendocrinologist and my neurosurgeon.  After going over my test results for the last 3 weeks, we decided that a second surgery is probably the way to go at this point.  I am overwhelmed by all of this, but a little bit relieved too.  I have noticed the last week especially that I feel worse than I did before the surgery as far as my Cushing's symptoms go.  I have had high blood pressure, more weight gain, swelling, and I haven't been sleeping at night.  All of these symptoms seemed to be enough information for the doctors to go ahead with the surgery before we get the next results.  It's nice to know that I'm not fighting for a diagnosis anymore!

My surgery is set for January 28th as of right now, and as soon as we have an updated MRI and some more test results we'll be good to go.

Comments

Post a Comment

Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…
4 comments
Read more

Cushing's Awareness Challenge - Day 4

I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?  
It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.
Maybe my life would be easier.
But, maybe this would not be true.  I am not looking to find out.  Chronic illness is lonely.  It seems, from the outside, that cancer is not.  Most people know someone with cancer.  Most people know what cancer involves.  Endless appointments, surgeries, maybe even chemotherapy or radiation.  Cancer is life threatening. Did you know that a lot of chronic illnesses involve all of the same things?  
With Cushing's, a lot of people have multiple surgeries.  I have had 3 directly related to Cushing's, and…
Post a Comment
Read more

Cushing's Awareness Challenge - Day 29

Post a Comment
Read more