I had my post op appointment with my endocrinologist today. We pretty much got no news. My 8am cortisol levels for the first 4 days after surgery were a little bit higher than she'd like to see them, but then I had two 24 hr urine tests later in the week that had low cortisol levels. I had low levels after the first surgery too, so we're going to do some more tests and wait and see. We discussed what my options were if this surgery turns out to not be a cure for me. They're a little bit better than I had originally thought, but not ideal. I would rather not rely on medication and wait for radiation to work or have an adrenalectomy and also be dependent on medication forever. As far as how I'm feeling, I feel pretty good. I'm not sleeping well, which could be due to the medication I'm on or because of the Cushing's, it's hard to tell. I never felt the immediate weight off my shoulders like I did with the last surgery. I felt so different even a f
(Formerly known as Life with Cushing's)