Monday I had my official 6 week post op appointments with my endocrinologist and surgeon. They went pretty much as expected. My cortisol levels keep rising, and while not abnormally high yet, this is not a good sign and we will consider me not cured of Cushing's. My surgeon said that since I am past the 6 week mark, I would officially be the longest delayed cure he has ever seen if my cortisol levels started to drop, so I think it's safe to say that the second surgery was not a success. I could tell he felt bad about it, because he seemed interested and engaged in our conversation, where before surgery he was Mr. Business and didn't have a warm, fuzzy personality. We discussed my options, and I managed to just make it into a clinical trial of a new drug. I just have to have a high 24 hr UFC first, and hopefully the one I brought yesterday broke that normal limit so I can get started. The medication should take away or improve all of the symptoms of Cushing's. I
(Formerly known as Life with Cushing's)