So I'm not doing the clinical trial. My midnight salivary tests have been too low to qualify me for it. Everything else was there, I just needed 1 high but my body was not cooperative, as usual.
I go back on May 10th to see what we're going to do next.
In other news, I've developed another symptom. I noticed at work last week that my forearms were covered in tiny red dots. They didn't blanch, so I asked one of the doctors I work with about them. She said they were petechiae, which is little burst capillaries under the skin, and told me to call my doctor ASAP so they can run some tests. I went the next day to my PCP's office, and the doctor there was great. He was very interested in my whole Cushing's journey, and agreed with the doctor from work that they were petechiae and ran some tests. My blood counts were good, (they look for low platelets or other abnormal counts) and I found out today that I don't have vasculitis, which is an autoimmune disease that breaks down your blood vessels. He thought that might have been the reason for the petechiae, since I have a strong family history of auto immune diseases anyway. Now I have to go back on Monday to get checked out again since they're at a loss!
The testing continues, I have to do a few more UFCs in the coming weeks. I thought maybe I was done for a little while, but I got a letter saying they want more. I should have done them last week but wasn't thinking and didn't get the letter in time, so I guess I'll just have to do them now. Last week I am pretty sure I was in a high cycle. It's DEFINITELY cyclical again.
So that's it for now, more mysteries and no explanations yet.
I go back on May 10th to see what we're going to do next.
In other news, I've developed another symptom. I noticed at work last week that my forearms were covered in tiny red dots. They didn't blanch, so I asked one of the doctors I work with about them. She said they were petechiae, which is little burst capillaries under the skin, and told me to call my doctor ASAP so they can run some tests. I went the next day to my PCP's office, and the doctor there was great. He was very interested in my whole Cushing's journey, and agreed with the doctor from work that they were petechiae and ran some tests. My blood counts were good, (they look for low platelets or other abnormal counts) and I found out today that I don't have vasculitis, which is an autoimmune disease that breaks down your blood vessels. He thought that might have been the reason for the petechiae, since I have a strong family history of auto immune diseases anyway. Now I have to go back on Monday to get checked out again since they're at a loss!
The testing continues, I have to do a few more UFCs in the coming weeks. I thought maybe I was done for a little while, but I got a letter saying they want more. I should have done them last week but wasn't thinking and didn't get the letter in time, so I guess I'll just have to do them now. Last week I am pretty sure I was in a high cycle. It's DEFINITELY cyclical again.
So that's it for now, more mysteries and no explanations yet.
Comments
Post a Comment