Skip to main content

BLA it is...

I had my consults today with the adrenal surgeon and the radiation oncologist.  Both went well, I was preparing myself to have a hard choice with lots to think about, but instead my mind was almost made up for me.  I have been leaning towards having an adrenalectomy but everyone keeps trying to scare me out of it (doctors, family, friends).  I was prepared to give radiation a fair chance but the radiation oncologist basically made a case to have a BLA instead.

He thought it was a very obvious choice given my age and how long I've had to deal with this.  Waiting 3 years for something to MAYBE work while it probably damages the rest of my pituitary seemed like a stupid idea.

I haven't really processed any of this too much yet.  It's overwhelming to think I'm going to FINALLY be done with Cushing's, but at the same time trading it for another lifelong disease.

Comments

Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.

Cushing's Awareness Challenge - Day 29