I had my consults today with the adrenal surgeon and the radiation oncologist. Both went well, I was preparing myself to have a hard choice with lots to think about, but instead my mind was almost made up for me. I have been leaning towards having an adrenalectomy but everyone keeps trying to scare me out of it (doctors, family, friends). I was prepared to give radiation a fair chance but the radiation oncologist basically made a case to have a BLA instead.
He thought it was a very obvious choice given my age and how long I've had to deal with this. Waiting 3 years for something to MAYBE work while it probably damages the rest of my pituitary seemed like a stupid idea.
I haven't really processed any of this too much yet. It's overwhelming to think I'm going to FINALLY be done with Cushing's, but at the same time trading it for another lifelong disease.
He thought it was a very obvious choice given my age and how long I've had to deal with this. Waiting 3 years for something to MAYBE work while it probably damages the rest of my pituitary seemed like a stupid idea.
I haven't really processed any of this too much yet. It's overwhelming to think I'm going to FINALLY be done with Cushing's, but at the same time trading it for another lifelong disease.
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