Skip to main content

September 2nd - RIP Adrenal Glands!

My BLA is scheduled for September 2nd.  It's real now!  I will finally be trading up - getting rid of Cushing's Disease in exchange for Addison's Disease.  Nothing else too exciting to say about that.  It seems so far away but too soon all at the same time.

Recently I've been wanting to steal every single one of Melissa's blog posts :)  Go check out her blog at Cushing's Moxie - Fighting the Worst Disease You've Never Heard Of

This article made me really sad - the emotional and cognitive symptoms of Cushing's have definitely been some of the hardest for me to deal with.  Academics came easily to me throughout middle and high school, but once I got to college I started having trouble focusing and couldn't seem to wrap my head around complex concepts.  I couldn't study for tests, I felt like I had no memory.  It didn't help that my messed up sleeping pattern made me too tired to go to class some days.  Everyone (myself included) assumed that the freedom of college and lack of structure was to blame for my horrendous grades.  I seemed to fall behind at the beginning of every semester with some sort of disaster, then never caught up.

After being diagnosed, it was so validating to hear that I wasn't just lazy and stupid - something I thought I had known all along but definitely doubted sometimes.

This article describes the effect Cushing's Disease has on the brain.  It's scary, and I hope after my surgery in September I will start getting some of my brain power back!

Irreversible Effects of Previous Cortisol Excess on Cognitive Functions in Cushing's Disease

Comments

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.

Cushing's Awareness Challenge - Day 8 - Happy Birthday Harvey Cushing!!!

Today is Harvey Cushing's Birthday, therefore, today is Cushing's Awareness Day.

To learn more about Cushing's, watch this video made by an endocrinologist.



To watch Harvey Cushing in surgery, watch this:




Happy Cushing's Awareness Day!