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Showing posts from September, 2010

Back to the ER...

Nothing is ever easy!  Last night I was feeling a little off and felt my heart racing.  I checked my pulse and it was over 140 (Normal is 60-100), so that had me a little worried.  I called the endocrinologist on call who said with a heart rate that high I needed to go to the emergency room.  We decided to go to the hospital across the street instead of driving into Boston, which was fine for last night but remind me never to do that again.

My mom and I got to the hospital and I went to check in.  The waiting room was full so I was dreading the long wait but hoping my situation would get me in fast.  After some convincing, I got into the actual emergency room where they took my vitals again.  My blood pressure was up to 156/110 (Normal is BELOW 120/80).  My pulse was down to 120, which is still too high.  They did an EKG which shows that my heart beat wasn't irregular, and hooked me up to some fluids after they checked my electrolytes and a few other things.  The doctor I saw was…

2 Weeks Post BLA

It's OVER!  My surgery went great - my surgery was on Thursday and I got to come home on Saturday like I wanted to.  I've been home for about 10 days now and I'm starting to get bored.  I've lost 10.5 lbs in 13 days though!  So that's encouraging that I'm losing weight that fast while I spend my day in bed or on the couch.  

I have found it really hard to wake up in the mornings, I have been falling asleep around 1 or 2am and waking up around 8 or 9, when I take my medication and watch TV for a while, but the last few days I've been falling back asleep until 12 or 1 in the afternoon.  I am getting really exhausted after doing small things, like going to the hospital across the street for lab work or going to the store just to get out of the house with my mom.  I am VERY achy like I have the flu but that's all normal, even good signs that everything worked and my body is not making any cortisol.
I go for my first post-op appointment with the surgeon Friday…

Tomorrow's the big day!

I don't have much to say except that I am terrified.  Not really for the actual surgery, but the aftermath.  I have been ready for this twice in less than 9 months and for some reason, this time I'm not ready.

A few months from now I'll look back and think this was nothing compared to the relief of no more Cushing's, but right now it's overwhelming and scary.

Hopefully I'll post an update at some point this weekend - otherwise call, email, text, facebook, whatever.  Can't wait to be able to say I'M CURED.

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