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Back to the ER...

Nothing is ever easy!  Last night I was feeling a little off and felt my heart racing.  I checked my pulse and it was over 140 (Normal is 60-100), so that had me a little worried.  I called the endocrinologist on call who said with a heart rate that high I needed to go to the emergency room.  We decided to go to the hospital across the street instead of driving into Boston, which was fine for last night but remind me never to do that again.

My mom and I got to the hospital and I went to check in.  The waiting room was full so I was dreading the long wait but hoping my situation would get me in fast.  After some convincing, I got into the actual emergency room where they took my vitals again.  My blood pressure was up to 156/110 (Normal is BELOW 120/80).  My pulse was down to 120, which is still too high.  They did an EKG which shows that my heart beat wasn't irregular, and hooked me up to some fluids after they checked my electrolytes and a few other things.  The doctor I saw was very nice, and had to call the endocrinologist more than once to see what he should do next.  My electrolytes were fine, my CBC was normal except for a mildly high WBC count which could signal an infection, and they gave me morphine which took my headache away and reduced my BP and pulse enough so that they weren't terribly concerned.  Everyone was puzzled because typically, when someone walks into the ER with those kinds of symptoms, it means their adrenal glands are working overtime.  I don't HAVE adrenal glands anymore and the medications I take substitute those hormones so really, my body shouldn't go crazy like that anymore.  They were about to send me up to MGH so I could be monitored there but when everything came back normal and my pulse came down, they decided I could go home and call my endocrinologist today to see what our next step should be.   I'm still waiting to hear back.

They chalked it up to dehydration (which I thought was probably not the case, as I have been drinking A LOT the last few days) and anxiety, which definitely played a role once they told me to go to the hospital. I hate being a patient in the ER.

That was our fun Sunday night!  I am glad we did a dry run though, I wasn't having any adrenal insufficiency or adrenal crisis so we got to see what we had to do differently next time to make sure I am seen faster, as I've heard horror stories about other BLA patients who are ignored for too long, which could lead to a preventable death.

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