Skip to main content

I lasted 3 days this time...

before having to call out sick.  I spent all weekend sleeping, went back to work on Tuesday ready for a longer week, felt a little "off" at the end of the night and fell asleep before midnight.  I woke up in the middle of the night super congested and with a very sore throat and a nasty cough.  Of course I would get a cold!  I called out Wednesday and decided to take a trip to the doctor's office to see what they had to say about this considering it was my first illness post BLA.  The NP I saw was incredibly nice and very sympathetic when I burst into tears when she told me I had to stay home at least another day.  (Who cries about not being able to go to work?  Something is wrong with me...) I spent Wednesday and Thursday sleeping, monitoring my temperature, taking Advil, and sleeping.

This morning I woke up feeling a little bit better so I decided to go to work.  Of course things like "How are you feeling?" made me cry about 12 times before I had a chance to take my coat off.  (See? Something is wrong with me!)  I spent the day taking it easy and answering phones, which is probably what I will be doing for the next week or two until I get back to full speed.

It's been very frustrating to have just a little cold bring me down so much.  I feel silly for crying all the time but I feel like I have even less control of my tears than before, if that's even possible!

I'm hoping after resting this weekend I'll be feeling a lot better by Tuesday and ready to work for more than 3 days before taking another break!

Comments

amazon audible

Popular posts from this blog

Cushing's Awareness Challenge - Day 9

The only potentially permanent treatment for Cushing's is surgery.  Whether you have a pituitary tumor, adrenal tumor, or ectopic source of ACTH, most often, you will eventually need surgery.

For me, the first step was a pituitary surgery to try to remove the tumor in my pituitary gland. They went through my nose to access the pituitary gland, which means you have no visible scars after.
I was very nervous heading into the surgery, but didn't have much time to dwell on it, as my surgery was scheduled about a week after my IPSS.  I talked to a lot of people before, about their experiences, and heard vastly different stories from each person.
The only thing I remember from before my surgery was being rolled down what looked like a basement hallway (all concrete), while passing maybe 30 operating rooms.  I saw patients in the hallways on stretchers waiting for surgery, I saw into the small windows in the doors to operating rooms, it was a very scary experience.  Obviously, not ev…

Cushing's Awareness Challenge - Day 4

I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?  
It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.
Maybe my life would be easier.
But, maybe this would not be true.  I am not looking to find out.  Chronic illness is lonely.  It seems, from the outside, that cancer is not.  Most people know someone with cancer.  Most people know what cancer involves.  Endless appointments, surgeries, maybe even chemotherapy or radiation.  Cancer is life threatening. Did you know that a lot of chronic illnesses involve all of the same things?  
With Cushing's, a lot of people have multiple surgeries.  I have had 3 directly related to Cushing's, and…

Cushing's Awareness Challenge - Day 12

Today's post is a little bit out of my comfort zone. We're going to talk about weight.
One of the most common symptoms of Cushing's is weight gain.  Some people only gain 30 pounds, some gain hundreds.  I always have a hard time quantifying the exact amount I gained because I was a teenager, or even a young child when I first had Cushing's symptoms.  My best guess is about 150 pounds, only because that is close to what I've lost after treatment.  
When you weigh almost 300 pounds, people treat you differently.  I know this, because I've also seen how people treat me now.  
I was obese, due to Cushing's, throughout college. In my opinion, this is one of the most difficult times to be heavy. My first year of college, I was often left out of plans.  My two roommates were very close, and I always felt like the third wheel.  One of them even left a letter she had written to a friend out for me to see.  It was one of the cruelest things I had ever read.  She was wis…