Skip to main content

I lasted 3 days this time...

before having to call out sick.  I spent all weekend sleeping, went back to work on Tuesday ready for a longer week, felt a little "off" at the end of the night and fell asleep before midnight.  I woke up in the middle of the night super congested and with a very sore throat and a nasty cough.  Of course I would get a cold!  I called out Wednesday and decided to take a trip to the doctor's office to see what they had to say about this considering it was my first illness post BLA.  The NP I saw was incredibly nice and very sympathetic when I burst into tears when she told me I had to stay home at least another day.  (Who cries about not being able to go to work?  Something is wrong with me...) I spent Wednesday and Thursday sleeping, monitoring my temperature, taking Advil, and sleeping.

This morning I woke up feeling a little bit better so I decided to go to work.  Of course things like "How are you feeling?" made me cry about 12 times before I had a chance to take my coat off.  (See? Something is wrong with me!)  I spent the day taking it easy and answering phones, which is probably what I will be doing for the next week or two until I get back to full speed.

It's been very frustrating to have just a little cold bring me down so much.  I feel silly for crying all the time but I feel like I have even less control of my tears than before, if that's even possible!

I'm hoping after resting this weekend I'll be feeling a lot better by Tuesday and ready to work for more than 3 days before taking another break!

Comments

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland.

I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha…

Keeping in Touch

I have found it harder and harder to keep in touch with friends lately. I feel like it should be the opposite, with these smartphones in our hands 24/7, but I just feel more isolated.

A big part of the problem it is that I live at least an hour away from most of my friends, if not more.  There's not a lot of friends that I can call last minute to say "Hey, want to do something?".  Any activity takes more planning, more effort on both sides.  I often hesitate to plan something too far in advance because I'm worried I might have to cancel if I don't feel up to it.

I tend to plan more group events where I have the control, like yearly trips to Martha's Vineyard (which is so so soon!), where I usually have my own car, and it tends to be a slower paced weekend.  I won't inconvenience anyone when I need to take a break.

I need to make more of an effort, I know that.  And if I cancel on you once or twice, don't take it personally.  It's probably just be…