So far, July has not been a good month for me. As it turns out, I will NOT be going to school in August. Due to financial and ongoing health issues, I guess now is not the right time. It's been extremely hard to face that reality because it was one of the few areas in my life where I saw forward motion - it would've gotten me out of Plymouth and it was something I could be proud of and actually use my brain.
Instead, I'll be hanging out at my mom's while we figure a few things out.
In the last few weeks, my health has taken a nosedive. I started gaining weight again (seriously?), was diagnosed with asthma, and have not been able to sleep the last few weeks. I have TONS of swelling in my legs (and everywhere else) that I had been able to get rid of with salt and medication adjustments but now it's not going anywhere. Walking to my car at work results in increased swelling and shortness of breath. Not a good thing.
Because of all of this, I decided to see an endocrinologist at my PCP's office instead of waiting for my appointment at MGH. BEST DECISION EVER! She was amazing, she even learned a few things about Cushing's! (I am only the second patient she's seen that has had it.) We spent an hour and a half together this week and have some interesting theories about what's going on. The most obvious would be thyroid or electrolytes that are out of whack, so we're testing those first. After that, she thinks we should make sure I'm not producing cortisol anymore. (My biggest fear EVER). A few other things are also going to be ruled out (hopefully).
So, all in all, I'm not doing so great :( All of this has been super hard to deal with emotionally, I feel like every time I start to feel better or have something to look forward to, it gets taken away. For any friends and family reading this - I'm counting on you to help get me through this! Seriously - a night out once in a while or a phone call to check in will definitely help get my mind off of everything and remember that I DO have good things around me, it's not all bad. It's hard to ask for help but I'm at the point where I am realizing I need it. So thanks in advance! Hopefully I'll have a better update soon :)
Instead, I'll be hanging out at my mom's while we figure a few things out.
In the last few weeks, my health has taken a nosedive. I started gaining weight again (seriously?), was diagnosed with asthma, and have not been able to sleep the last few weeks. I have TONS of swelling in my legs (and everywhere else) that I had been able to get rid of with salt and medication adjustments but now it's not going anywhere. Walking to my car at work results in increased swelling and shortness of breath. Not a good thing.
Because of all of this, I decided to see an endocrinologist at my PCP's office instead of waiting for my appointment at MGH. BEST DECISION EVER! She was amazing, she even learned a few things about Cushing's! (I am only the second patient she's seen that has had it.) We spent an hour and a half together this week and have some interesting theories about what's going on. The most obvious would be thyroid or electrolytes that are out of whack, so we're testing those first. After that, she thinks we should make sure I'm not producing cortisol anymore. (My biggest fear EVER). A few other things are also going to be ruled out (hopefully).
So, all in all, I'm not doing so great :( All of this has been super hard to deal with emotionally, I feel like every time I start to feel better or have something to look forward to, it gets taken away. For any friends and family reading this - I'm counting on you to help get me through this! Seriously - a night out once in a while or a phone call to check in will definitely help get my mind off of everything and remember that I DO have good things around me, it's not all bad. It's hard to ask for help but I'm at the point where I am realizing I need it. So thanks in advance! Hopefully I'll have a better update soon :)
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