The National Institute of Health is conducting a quality of life survey meant for patient's who have or have had Cushing's Syndrome. Please fill this out if you are a diagnosed Cushie! I can't stress how important it is that big institutes like the NIH get accurate pictures of what life looks like before and after treatment. A surgery to remove a tumor does not necessarily mean we "go back to normal". In order to get help and support throughout the recovery process, healthcare professionals need to know what areas we need help with.
I haven't updated this blog in a very long time. I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood. Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post. To start - let's go back to June 2018. My grandmother died. She lived a wonderful long life, but it was especially hard on me. She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer. In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself. Yeah, you read that right. The day after re