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Cushing's Quality of Life Survey

The National Institute of Health is conducting a quality of life survey meant for patient's who have or have had Cushing's Syndrome.  Please fill this out if you are a diagnosed Cushie!  I can't stress how important it is that big institutes like the NIH get accurate pictures of what life looks like before and after treatment.  A surgery to remove a tumor does not necessarily mean we "go back to normal".  In order to get help and support throughout the recovery process, healthcare professionals need to know what areas we need help with.



Information about this survey and your consent to participate

Patients with Cushing's syndrome report decreased quality of life before and after surgical treatment. We are investigators at the U.S. National Institutes of Health who care for patients with Cushing's syndrome. We want to learn more about the patients' experience during the post-surgical recovery phase with particular reference to quality of life. We are inviting patients like you who have had surgical treatment to complete the survey. Your responses will be gathered anonymously and will be treated confidentially; we hope to use them in a publication so that other physicians can learn about these issues.
Please kindly complete the following online questionnaire which is comprised of approximately 27 questions and should take around 15 minutes.

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