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Showing posts from September, 2011

Yet another health update...

As many of you know, things haven't been that great with my health lately.  I just had an appointment with my endocrinologist at MGH that was very informative, although not very exciting.  My ACTH levels have increased dramatically since a few months ago.  This is to be expected after a BLA and since I likely have tumor tissue left in my pituitary gland, this wasn't too surprising.  She seemed a little concerned about this recent increase and took a look at my MRI from July.  I hadn't actually seen the images, I just read the radiologist's report that said everything looked normal considering the 2 surgeries.  She thought my pituitary stalk looked pretty enlarged (the stalk comes up vertically from the gland and connects it to the hypothalamus).  This could be because I have tumor growth, which would make sense because of the increased ACTH.  She is going to have my neurosurgeon look at the MRI to see what he thinks, at the very least this increases my MRI intervals to…

One year ago today...

It's hard to believe that tomorrow will be a whole year since my BLA.  I definitely think my expectations were high, and no, life post-op has not necessarily met those expectations.  Despite the many speed bumps (and brick walls), I still feel as though I made the right decision.  (Keep an eye out for upcoming posts about making tough medical decisions!)

To summarize the past year, I thought a pro-con-pro session was in order. (Thank you, Tri Delta for teaching me this important life skill of starting and ending on positives)
Pro: I have lost 42lbs, bringing me back to my pre-pituitary surgery weight.  About 70 more to go!  I got into school!NO OVERNIGHT HOSPITALIZATIONS!!!!!!I finally got to visit my bff and biggest supporter in Brooklyn - 3 apartments and almost 3 years after he moved to NYCCon: I still don't feel "well".  I have a hard time doing anything strenuous, I am still dealing with crazy swelling issues, I don't feel anywhere close to what I would imagine …