Skip to main content

Cushing's Awareness Challenge - Day 1

Happy April Fools Day! No jokes here as I start the 30 day Cushing's Awareness Challenge of blogging every day in April.  These blogs will answer a series of questions suggested by www.cushings-help.org

10 things I couldn't live without...

1.  http://www.cushings-help.org for providing me with endless information about Cushing's that provided me with a diagnosis.
2.  My online support groups
3.  My kindle or iPhone to keep me occupied in waiting rooms
4.  My mom for letting me move in with her and for sacrificing her days off to come with me to       appointments
5.  My friends that stuck with me through all of this
6.  My brother, sister, grandmother, aunts, uncles, cousins and dad
7.  My BLOG!  For enabling me to share my story without tears ;)
8.  Salt, salt, salt.
9.  Being trusted to take myself off of my "essential to life" steroids.  I'm fine and finally losing weight.
10.  My endocrinologist! For trusting me to make my own decisions, for providing me with the best treatment possible, and for helping me through this awful disease. Without her, I might not be alive today.

Comments

Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…

Cushing's Awareness Challenge - Day 29

Cushing's Awareness Challenge - Day 4

I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?  
It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.
Maybe my life would be easier.
But, maybe this would not be true.  I am not looking to find out.  Chronic illness is lonely.  It seems, from the outside, that cancer is not.  Most people know someone with cancer.  Most people know what cancer involves.  Endless appointments, surgeries, maybe even chemotherapy or radiation.  Cancer is life threatening. Did you know that a lot of chronic illnesses involve all of the same things?  
With Cushing's, a lot of people have multiple surgeries.  I have had 3 directly related to Cushing's, and…