Skip to main content

Cushing's Awareness Challenge - Day 11 - The Cost of Cushing's

Yes, I scheduled this post for the wrong day and it didn't show up yesterday! Sorry for the delay.

What does having Cushing's Disease Cost?

Well, after going through my insurance claims for the 12 months that I had my 3 surgeries, it costs A LOT of money.  And that's only including office visits, procedures, hospital stays, and emergency room visits.  The number was in the hundreds of thousands of dollars.  Imagine getting this diagnosis without insurance?  You couldn't afford to be treated. Instead, you would continue to get sicker and sicker until your heart failed or you had a stroke.

In my case, I am still dealing with medical bills from procedures or lab work that's not covered by my insurance, emergency room visits, and just regular office copays from offices that didn't accept credit/debit cards.  Cushing's has cost me my financial independence, depending on my parents for a place to live, food to eat, and help with never ending bills.


Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…

Cushing's Awareness Challenge - Day 29

Cushing's Awareness Challenge - Day 4

I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?  
It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.
Maybe my life would be easier.
But, maybe this would not be true.  I am not looking to find out.  Chronic illness is lonely.  It seems, from the outside, that cancer is not.  Most people know someone with cancer.  Most people know what cancer involves.  Endless appointments, surgeries, maybe even chemotherapy or radiation.  Cancer is life threatening. Did you know that a lot of chronic illnesses involve all of the same things?  
With Cushing's, a lot of people have multiple surgeries.  I have had 3 directly related to Cushing's, and…