Skip to main content

Cushing's Awareness Challenge - Day 27 - Weight Chart

I have been pretty open about my weight since I started losing, but would've never imagined of telling ANYONE, not even my mom, when I weighed 285lbs. Now that I weigh less, I feel more confident and proud of how far I've come.  So, I am sharing a weight chart that I have kept since 2006, to keep track of the weight I was gaining, and rarely losing. (ignore the lighter purple lines, those were my weight loss goals.



For those wanting to analyze, my starting weight in 2002 was 226lbs, when I suspected I had Cushing's but was not diagnosed.  When I was diagnosed I was 253, in October 2009.  After my first surgery, you can see the drop right before 1/2010, then it went back up to 256 over the next 10 days.  The second surgery was 2/16/10, and my BLA was 9/2/10.  I took myself off steroids 9/25/11, and went back on a few weeks ago, but have seen no slowing down with my weight loss.  I try to record my weight once a week.  I think I only have 15-20 more pounds to go to reach my pre-cushing's 16-17 year old weight.  I used to think I was HUGE at 160lbs, now it's the thinnest I've been in 10 years.  

Comments

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland.

I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha…

Keeping in Touch

I have found it harder and harder to keep in touch with friends lately. I feel like it should be the opposite, with these smartphones in our hands 24/7, but I just feel more isolated.

A big part of the problem it is that I live at least an hour away from most of my friends, if not more.  There's not a lot of friends that I can call last minute to say "Hey, want to do something?".  Any activity takes more planning, more effort on both sides.  I often hesitate to plan something too far in advance because I'm worried I might have to cancel if I don't feel up to it.

I tend to plan more group events where I have the control, like yearly trips to Martha's Vineyard (which is so so soon!), where I usually have my own car, and it tends to be a slower paced weekend.  I won't inconvenience anyone when I need to take a break.

I need to make more of an effort, I know that.  And if I cancel on you once or twice, don't take it personally.  It's probably just be…