Skip to main content

Cushing's Awareness Challenge - Day 10 - Would you say something?

I was out today and saw a girl that looked like she might have Cushing's.  I was trying to decide if I wanted or could say something to her, incase she has never heard of it.  My mom has done it before, just telling people to look it up, but I have never done it.  I'm afraid of offending someone, or getting emotional about it in front of a stranger.

I had an opportunity when she got in line behind me, but I was still having a hard time with it, and ended up not saying anything.  I know that many people with Cushing's that have no problem going up to strangers and giving them information but today, I just didn't have the guts.

What would you have done?  Have you ever approached a stranger about this or something else that could be uncomfortable?

Comments

  1. VanessaFayeApril 11, 2012 at 3:14 PM

    I've gotten in the habit of passing out brochures. I just say I'm trying raise awareness about this disease (I may say I have it even) and then it won't be like you were just mentioning it because they were overweight!

    ReplyDelete
    Replies
    1. DanielleApril 20, 2012 at 1:36 AM

      That's a great idea! I was thinking maybe getting business cards with my website on them so people can see what Cushing's is.

      Delete

Post a Comment

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood. Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post. To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer. In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after re
Post a Comment
Read more

10 days at MGH

It's been 10 days, and I am still in the hospital.  I walk two or three (very short) laps around this floor and my heart rate is upwards of 130, my lips, fingers, and toes are increasingly blue-tinged.  My oxygen saturation levels are even lower now, after sitting here for over a week.  So what have we accomplished so far?  Let me tell you. I had the arterial blood gas sampling done on Sunday.  It took a couple more tries but success!  It was of course, painful but nothing that I couldn't handle, especially if it meant an answer and an easy fix.  My arterial blood looked very dark as she was drawing it out, not the bright red oxygenated blood you usually see from arteries.  The doctor commented on this, and said that it was very interesting. Unfortunately, I did not have an abnormal level of methemoglobin.  So that ruled out methemoglobinemia .  The plan was to have an echocardiogram on Monday.  After waiting most of the day, I got pushed to the next day's schedule
2 comments
Read more

MGH Round 2

Hi all, I've been pretty absent from blogging/life activities over the last month or two because my whole life seems to be consumed again by illness and complications from Adrenal Insufficiency.  Right now, I'm typing from my private room at Mass General, where I have been since Saturday.  Before that, I was at a local hospital for a few nights. After being discharged with no answers for my shortness of breath in January, and then refusing further treatment for Lupus related hemolytic anemia, I went back to work and tried to continue on as normal.  This worked for a while, but then enlarged lymph nodes started popping up all over my neck.  I was seen a few times at my PCP's office, and at first thought it might be the start of a virus, but when they didn't disappear after a few weeks, I had an ultrasound to see if we could find a cause.  It turns out, aside from multiple slightly enlarged lymph nodes, I had one whopper lymph node on the left side of my neck, which w
Post a Comment
Read more