Skip to main content

Cushing's Awareness Challenge - Day 10 - Would you say something?

I was out today and saw a girl that looked like she might have Cushing's.  I was trying to decide if I wanted or could say something to her, incase she has never heard of it.  My mom has done it before, just telling people to look it up, but I have never done it.  I'm afraid of offending someone, or getting emotional about it in front of a stranger.

I had an opportunity when she got in line behind me, but I was still having a hard time with it, and ended up not saying anything.  I know that many people with Cushing's that have no problem going up to strangers and giving them information but today, I just didn't have the guts.

What would you have done?  Have you ever approached a stranger about this or something else that could be uncomfortable?

Comments

  1. VanessaFayeApril 11, 2012 at 3:14 PM

    I've gotten in the habit of passing out brochures. I just say I'm trying raise awareness about this disease (I may say I have it even) and then it won't be like you were just mentioning it because they were overweight!

    ReplyDelete
    Replies
    1. DanielleApril 20, 2012 at 1:36 AM

      That's a great idea! I was thinking maybe getting business cards with my website on them so people can see what Cushing's is.

      Delete

Post a Comment

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood. Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post. To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer. In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after re
Post a Comment
Read more

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland. I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha
5 comments
Read more

10 days at MGH

It's been 10 days, and I am still in the hospital.  I walk two or three (very short) laps around this floor and my heart rate is upwards of 130, my lips, fingers, and toes are increasingly blue-tinged.  My oxygen saturation levels are even lower now, after sitting here for over a week.  So what have we accomplished so far?  Let me tell you. I had the arterial blood gas sampling done on Sunday.  It took a couple more tries but success!  It was of course, painful but nothing that I couldn't handle, especially if it meant an answer and an easy fix.  My arterial blood looked very dark as she was drawing it out, not the bright red oxygenated blood you usually see from arteries.  The doctor commented on this, and said that it was very interesting. Unfortunately, I did not have an abnormal level of methemoglobin.  So that ruled out methemoglobinemia .  The plan was to have an echocardiogram on Monday.  After waiting most of the day, I got pushed to the next day's schedule
2 comments
Read more