Skip to main content

Florida!

So I wrote the last post in the airport waiting for my flight, so didn't get to share too much about my trip.  I was so excited to have a mini vacation and see where my good friend, Christine, had been living for the past 2 years.  As I wrote, the flight down was horrendous.  A thank you goes to the tall man who sat beside me, he kept his tray table down the whole flight and kept most of my belongings on it because I spent the flight with my head on mine.  Great guy who was more than patient in a gross situation.

Anyway I got there, was fine as soon as I got off the plane, and was sweating in my leggings long sleeved shirt in the Florida heat.  For the first time, maybe ever, I didn't mind being a little warm!  I was just so relived to be on the ground.  It was an early morning the next day and we made our way too school for their presentation on ME!  The presentation was great, and I fought tears every time I saw a picture of myself up on the screen, but I made it through with no noticeable breakdowns.  At the end of the presentation, I was invited to talk for a few minutes about my experience as a patient.  I was trying so hard not to cry that I ended up thinking I was funny (I'm not) and made some jokes about getting through security with my huge needles.

The next day was spent mostly in the sun, and it was time to leave way too soon!

I am so glad I went, so happy the flight back was fine (I finally have found the right combo of drugs to fly!), and proud of the group that presented because theirs was obviously the best presentation of the day.

Next trip - Houston (maybe?) for the ENDO Conference!!!!!





Comments

Popular posts from this blog

Plastic Surgery

When I was 17, I thought about getting a breast reduction.  I was still pretty thin at this point and it bothered me to by bigger clothes just to fit my bust.  I had a hard time exercising and always had back pain and grooves in my shoulders where my bra straps sat. I had a few consults with different plastic surgeons and ended up scheduling surgery for the week before my high school graduation.  I ended up "chickening out" because I didn't want the surgery to have any impact on my graduation, and I hadn't had any major surgeries before.  I started gaining weight due to Cushing's shortly after, so it worked out for the best in the end.

Now, my breast size has gone way down since I've lost weight, and even though they are still bigger than average, they don't get in my way as much and are more proportional to my body. These days, my plastic surgery dream is to have a tummy tuck.  I have a lot of excess skin on my body, especially on my belly, and in a drea…

Cushing's Awareness Challenge - Day 9

The only potentially permanent treatment for Cushing's is surgery.  Whether you have a pituitary tumor, adrenal tumor, or ectopic source of ACTH, most often, you will eventually need surgery.

For me, the first step was a pituitary surgery to try to remove the tumor in my pituitary gland. They went through my nose to access the pituitary gland, which means you have no visible scars after.
I was very nervous heading into the surgery, but didn't have much time to dwell on it, as my surgery was scheduled about a week after my IPSS.  I talked to a lot of people before, about their experiences, and heard vastly different stories from each person.
The only thing I remember from before my surgery was being rolled down what looked like a basement hallway (all concrete), while passing maybe 30 operating rooms.  I saw patients in the hallways on stretchers waiting for surgery, I saw into the small windows in the doors to operating rooms, it was a very scary experience.  Obviously, not ev…

Cushing's Awareness Challenge - Day 4

I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?  
It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.
Maybe my life would be easier.
But, maybe this would not be true.  I am not looking to find out.  Chronic illness is lonely.  It seems, from the outside, that cancer is not.  Most people know someone with cancer.  Most people know what cancer involves.  Endless appointments, surgeries, maybe even chemotherapy or radiation.  Cancer is life threatening. Did you know that a lot of chronic illnesses involve all of the same things?  
With Cushing's, a lot of people have multiple surgeries.  I have had 3 directly related to Cushing's, and…