Skip to main content

Florida!

So I wrote the last post in the airport waiting for my flight, so didn't get to share too much about my trip.  I was so excited to have a mini vacation and see where my good friend, Christine, had been living for the past 2 years.  As I wrote, the flight down was horrendous.  A thank you goes to the tall man who sat beside me, he kept his tray table down the whole flight and kept most of my belongings on it because I spent the flight with my head on mine.  Great guy who was more than patient in a gross situation.

Anyway I got there, was fine as soon as I got off the plane, and was sweating in my leggings long sleeved shirt in the Florida heat.  For the first time, maybe ever, I didn't mind being a little warm!  I was just so relived to be on the ground.  It was an early morning the next day and we made our way too school for their presentation on ME!  The presentation was great, and I fought tears every time I saw a picture of myself up on the screen, but I made it through with no noticeable breakdowns.  At the end of the presentation, I was invited to talk for a few minutes about my experience as a patient.  I was trying so hard not to cry that I ended up thinking I was funny (I'm not) and made some jokes about getting through security with my huge needles.

The next day was spent mostly in the sun, and it was time to leave way too soon!

I am so glad I went, so happy the flight back was fine (I finally have found the right combo of drugs to fly!), and proud of the group that presented because theirs was obviously the best presentation of the day.

Next trip - Houston (maybe?) for the ENDO Conference!!!!!





Comments

Post a Comment

Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…
4 comments
Read more

Cushing's Awareness Challenge - Day 4

I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?  
It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.
Maybe my life would be easier.
But, maybe this would not be true.  I am not looking to find out.  Chronic illness is lonely.  It seems, from the outside, that cancer is not.  Most people know someone with cancer.  Most people know what cancer involves.  Endless appointments, surgeries, maybe even chemotherapy or radiation.  Cancer is life threatening. Did you know that a lot of chronic illnesses involve all of the same things?  
With Cushing's, a lot of people have multiple surgeries.  I have had 3 directly related to Cushing's, and…
Post a Comment
Read more

Cushing's Awareness Challenge - Day 29

Post a Comment
Read more