Skip to main content

Just as things were improving...

Yet another setback.  I didn't see this one coming at all.  I was at a conference that I go to every year, and on Saturday I woke up with a headache.  Nothing big, just a little annoying headache.  I went through the day, even calling my endocrinologist on a weekend to get a refill for a medication I forgot.  After dinner, I was walking back to the main building and felt a little off. By the time I got back, I was slurring words and having a LOT of trouble with word retrieval.  This progressed until I had no speech that was intelligible and my right hand felt all tingly and numb.

My friends mom is a nurse and she was there to give my my injection of solu-cortef and Andrew called 911 (I think he did, someone did).  They took me here, to Mass General, where I was treated in the ER with tPA which breaks up clots that cause strokes in the brain.  I had scans, tests, and more tests, and finally as I was regaining some speech they sent me up to the Neuro-ICU to stay.

 Through the night my speech got better, and the next morning was like nothing had happened.  I was tired and had a great chance of bleeding so I was downgraded to the regular neuro floor (where I had both of my pituitary surgeries - I even know some of the nurses here still!)

Today, I'm crossing my fingers I will get to go home.  I am waiting for the doctors to go over my scan again.  I will definitely have to follow up in the stroke clinic because I will be at a slightly higher risk for having another one in the future.  Because of how quickly my friends and the doctors acted, I will have ZERO lasting effects.  I owe them more that I will ever be able to repay.

I'll probably post another update later this week.  Thank you all for your positive thoughts and visits, it definitely makes staying in the hospital just a little better!


EDIT: Just kidding.  I have to have an echocardiogram and a heart monitor fitted before I can go home.  I am guessing it will not be fast.

Comments

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood. Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post. To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer. In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after re

Happy New Year!

Happy 2018!  I hope this year is a good one for everyone.  2017 was not the best year for me, and it seems like a lot of people relate to that, either for personal reasons or global ones. 2017 started off with me being in the second month of unemployment.  I had just been denied social security disability for the first time this go around, and was feeling sicker than ever. Over the last year, I've faced more challenges than I ever thought I could, and somehow made it to where I am today. In 2018, I'm looking forward to finally being approved for disability.  I am also looking forward to some resolved health issues, or at least next steps in figuring out what is wrong. I hope 2018 is a happy and (relatively) healthy year. Happy New Year!

10 days at MGH

It's been 10 days, and I am still in the hospital.  I walk two or three (very short) laps around this floor and my heart rate is upwards of 130, my lips, fingers, and toes are increasingly blue-tinged.  My oxygen saturation levels are even lower now, after sitting here for over a week.  So what have we accomplished so far?  Let me tell you. I had the arterial blood gas sampling done on Sunday.  It took a couple more tries but success!  It was of course, painful but nothing that I couldn't handle, especially if it meant an answer and an easy fix.  My arterial blood looked very dark as she was drawing it out, not the bright red oxygenated blood you usually see from arteries.  The doctor commented on this, and said that it was very interesting. Unfortunately, I did not have an abnormal level of methemoglobin.  So that ruled out methemoglobinemia .  The plan was to have an echocardiogram on Monday.  After waiting most of the day, I got pushed to the next day's schedule