Skip to main content

Just as things were improving...

Yet another setback.  I didn't see this one coming at all.  I was at a conference that I go to every year, and on Saturday I woke up with a headache.  Nothing big, just a little annoying headache.  I went through the day, even calling my endocrinologist on a weekend to get a refill for a medication I forgot.  After dinner, I was walking back to the main building and felt a little off. By the time I got back, I was slurring words and having a LOT of trouble with word retrieval.  This progressed until I had no speech that was intelligible and my right hand felt all tingly and numb.

My friends mom is a nurse and she was there to give my my injection of solu-cortef and Andrew called 911 (I think he did, someone did).  They took me here, to Mass General, where I was treated in the ER with tPA which breaks up clots that cause strokes in the brain.  I had scans, tests, and more tests, and finally as I was regaining some speech they sent me up to the Neuro-ICU to stay.

 Through the night my speech got better, and the next morning was like nothing had happened.  I was tired and had a great chance of bleeding so I was downgraded to the regular neuro floor (where I had both of my pituitary surgeries - I even know some of the nurses here still!)

Today, I'm crossing my fingers I will get to go home.  I am waiting for the doctors to go over my scan again.  I will definitely have to follow up in the stroke clinic because I will be at a slightly higher risk for having another one in the future.  Because of how quickly my friends and the doctors acted, I will have ZERO lasting effects.  I owe them more that I will ever be able to repay.

I'll probably post another update later this week.  Thank you all for your positive thoughts and visits, it definitely makes staying in the hospital just a little better!


EDIT: Just kidding.  I have to have an echocardiogram and a heart monitor fitted before I can go home.  I am guessing it will not be fast.

Comments

Post a Comment

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood. Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post. To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer. In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after re
Post a Comment
Read more

Yet another health update...

As many of you know, things haven't been that great with my health lately.  I just had an appointment with my endocrinologist at MGH that was very informative, although not very exciting.  My ACTH levels have increased dramatically since a few months ago.  This is to be expected after a BLA and since I likely have tumor tissue left in my pituitary gland, this wasn't too surprising.  She seemed a little concerned about this recent increase and took a look at my MRI from July.  I hadn't actually seen the images, I just read the radiologist's report that said everything looked normal considering the 2 surgeries.  She thought my pituitary stalk looked pretty enlarged (the stalk comes up vertically from the gland and connects it to the hypothalamus).  This could be because I have tumor growth, which would make sense because of the increased ACTH.  She is going to have my neurosurgeon look at the MRI to see what he thinks, at the very least this increases my MRI intervals to
2 comments
Read more

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland. I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha
5 comments
Read more