Skip to main content

Almost 10,000 Views this year!

I can't believe I have over 9,000 views since the beginning of the year!  I was just telling one of my cousins at a family party this past weekend that I need to do 30 blogs in 30 days again, it really got me into a routine, even if I had to do a "catch up" blog or two.

As for me, I've been doing pretty well.  I just got back from Colorado, my cousin's wedding was the main reason we went but we got to do a lot of other things while we were there.

My health has given me a little break, as I haven't had any major issues since June.  I had another kidney stone that had probably been hanging out just waiting for the most inconvenient moment ever to decide to lodge itself in my ureter, but other than that I've been great!  I have traveled so much this summer, to Ft. Lauderdale to Christine's school, then Houston for ENDO, then DC to see some of my favorite people ever, and now Colorado!  I don't remember the last time I was able to do so much in one summer.

I was telling some friends at work that if I saw a gastroenterologist, I will have seen EVERY major specialty.  Now that is an unfortunate accomplishment!  I hope I never have GI problems!

In the next month, I have appointments with Urology, Sleep Specialists, Endocrine, and an EEG after seeing Neurology a few days ago.  It never ends, as all of us have learned over the years.

I still can't believe so many people have read about my little known disease this year, THANK YOU for supporting me from near and far! Let's hope this post gets us past 10,000 by next week!

Here are a few pictures from my summer, enjoy!


No I'm not that small, it was a GIANT chair!

I think we were getting a little bored in the car...


What a familiar picture! Just fill in some different names and a different date!

I swear there is a zebra in the very back!



Comments

Post a Comment

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood. Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post. To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer. In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after re
Post a Comment
Read more

Yet another health update...

As many of you know, things haven't been that great with my health lately.  I just had an appointment with my endocrinologist at MGH that was very informative, although not very exciting.  My ACTH levels have increased dramatically since a few months ago.  This is to be expected after a BLA and since I likely have tumor tissue left in my pituitary gland, this wasn't too surprising.  She seemed a little concerned about this recent increase and took a look at my MRI from July.  I hadn't actually seen the images, I just read the radiologist's report that said everything looked normal considering the 2 surgeries.  She thought my pituitary stalk looked pretty enlarged (the stalk comes up vertically from the gland and connects it to the hypothalamus).  This could be because I have tumor growth, which would make sense because of the increased ACTH.  She is going to have my neurosurgeon look at the MRI to see what he thinks, at the very least this increases my MRI intervals to
2 comments
Read more

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland. I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha
5 comments
Read more