Skip to main content

Almost 10,000 Views this year!

I can't believe I have over 9,000 views since the beginning of the year!  I was just telling one of my cousins at a family party this past weekend that I need to do 30 blogs in 30 days again, it really got me into a routine, even if I had to do a "catch up" blog or two.

As for me, I've been doing pretty well.  I just got back from Colorado, my cousin's wedding was the main reason we went but we got to do a lot of other things while we were there.

My health has given me a little break, as I haven't had any major issues since June.  I had another kidney stone that had probably been hanging out just waiting for the most inconvenient moment ever to decide to lodge itself in my ureter, but other than that I've been great!  I have traveled so much this summer, to Ft. Lauderdale to Christine's school, then Houston for ENDO, then DC to see some of my favorite people ever, and now Colorado!  I don't remember the last time I was able to do so much in one summer.

I was telling some friends at work that if I saw a gastroenterologist, I will have seen EVERY major specialty.  Now that is an unfortunate accomplishment!  I hope I never have GI problems!

In the next month, I have appointments with Urology, Sleep Specialists, Endocrine, and an EEG after seeing Neurology a few days ago.  It never ends, as all of us have learned over the years.

I still can't believe so many people have read about my little known disease this year, THANK YOU for supporting me from near and far! Let's hope this post gets us past 10,000 by next week!

Here are a few pictures from my summer, enjoy!


No I'm not that small, it was a GIANT chair!

I think we were getting a little bored in the car...


What a familiar picture! Just fill in some different names and a different date!

I swear there is a zebra in the very back!



Comments

amazon audible

Popular posts from this blog

Cushing's Awareness Challenge - Day 9

The only potentially permanent treatment for Cushing's is surgery.  Whether you have a pituitary tumor, adrenal tumor, or ectopic source of ACTH, most often, you will eventually need surgery.

For me, the first step was a pituitary surgery to try to remove the tumor in my pituitary gland. They went through my nose to access the pituitary gland, which means you have no visible scars after.
I was very nervous heading into the surgery, but didn't have much time to dwell on it, as my surgery was scheduled about a week after my IPSS.  I talked to a lot of people before, about their experiences, and heard vastly different stories from each person.
The only thing I remember from before my surgery was being rolled down what looked like a basement hallway (all concrete), while passing maybe 30 operating rooms.  I saw patients in the hallways on stretchers waiting for surgery, I saw into the small windows in the doors to operating rooms, it was a very scary experience.  Obviously, not ev…

Cushing's Awareness Challenge - Day 4

I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?  
It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.
Maybe my life would be easier.
But, maybe this would not be true.  I am not looking to find out.  Chronic illness is lonely.  It seems, from the outside, that cancer is not.  Most people know someone with cancer.  Most people know what cancer involves.  Endless appointments, surgeries, maybe even chemotherapy or radiation.  Cancer is life threatening. Did you know that a lot of chronic illnesses involve all of the same things?  
With Cushing's, a lot of people have multiple surgeries.  I have had 3 directly related to Cushing's, and…

Cushing's Awareness Challenge - Day 12

Today's post is a little bit out of my comfort zone. We're going to talk about weight.
One of the most common symptoms of Cushing's is weight gain.  Some people only gain 30 pounds, some gain hundreds.  I always have a hard time quantifying the exact amount I gained because I was a teenager, or even a young child when I first had Cushing's symptoms.  My best guess is about 150 pounds, only because that is close to what I've lost after treatment.  
When you weigh almost 300 pounds, people treat you differently.  I know this, because I've also seen how people treat me now.  
I was obese, due to Cushing's, throughout college. In my opinion, this is one of the most difficult times to be heavy. My first year of college, I was often left out of plans.  My two roommates were very close, and I always felt like the third wheel.  One of them even left a letter she had written to a friend out for me to see.  It was one of the cruelest things I had ever read.  She was wis…