Skip to main content

Lions, Tigers, and KIDNEY STONES, Oh My!

I had my 6th or 7th kidney stone a few weeks ago.  I had the bulk of them in college when I still had undiagnosed Cushing's Disease, and these horribly painful tiny things were the missing piece of the puzzle, for me at least.  Since college, I have gotten one every year or two, and after an ER visit and a day or two the painkillers can be stopped and life goes on.  Except this time, the wonderful nurses and physician assistant realized that this has been going on for too long without an answer or help to minimize the risk of getting more. 

I went BACK to MGH, my home away from home, to see a urologist today.  She and her student/fellow (?) came in and asked me if I had any significant medical history.  20 minutes later and a full history behind us, they focused in on my parathyroid hormone, which has been elevated before, and I had assumed, which is not a great thing to do with a history like mine, that the endocrinologist who found that abnormal test, had re-tested after my calcium regimen and the problem was resolved.  Of course, that never happened and a silly problem that could have easily been resolved via medication or very minimal surgery was now the probable cause of my many painful, awful kidney stones.  Have you ever had them?  Everyone assumes the most painful part is the exit from the body, but really, the worst part is when your kidney thinks it's in labor and contracts to get the sharp little thing out into the ureters, and once it's mostly through those, the worst part is over.

I had over half of the limit of blood drawn out of my body and put into 17 tubes, and off they went.  This next month is going to be extra busy for me!  EEG, sleep study results, urology follow up, endocrine and ENT coming up in the next few weeks!  

I'm going to one of my favorite places this weekend for some cousin and beach time, then gearing up for a busy September.  



Comments

Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.

Cushing's Awareness Challenge - Day 29