Skip to main content

A Repeat of an Old Post, This Time with New Answers

I posted in April 5 Challenges/5 Small Victories and thought it would be a good one to repeat today.

5 Challenges

1. Keeping up with appointments.  In the next month, I have 3 speech/respiratory therapy appointments, 1 endocrinology appointment, 1 neurology appointment, 1 ultrasound, and 1 dentist appointment.  All that while working 3 days a week and dealing with a chronic illness = more than a full time job.

2. Being Calm.  If I'm not at work or at an appointment, I'm worrying about what will happen at that appointment and what surgery is next and what that diagnosis means in terms of all of my other diseases.

3. Being on time for work.  I seriously have a hard time getting up in the morning.  I always forget about the 5-10 minutes I need to add to get from the parking lot to work via the shuttle.

4. Having a new diagnosis of hyperparathyroidism and dealing with what that means (more surgery, MEN-1?)

5. Taking medications every day.  I have a weird inability to swallow pills all of a sudden, so trying to swallow them ends up in gagging and chugging drinks and eating something right after to help everything go down without coming back up again.  I apologize to any coworkers or friends who have had to witness this.

5 Small Victories

1.  Going a whole day without crying is a regular occurrence now.

2.  BEING 159 (yes, you read right) pounds! That's a HUGE victory!

3.  Not untagging every single picture of myself on Facebook,  I sometimes like how I look in pictures now.

4.  Only 2 overnight hospitalizations in 2012!

5.  Reaching over 16,000 views on my blog in 1 year!

Expect a lot of appointment updates soon, this week my homework includes "open throat breathing",  which is hard to do without yawning at 2am, so I guess I'll practice more tomorrow.

Comments

Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…

Cushing's Awareness Challenge - Day 29

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.