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How Do You Explain what it's Like to Live with a Chronic Illness?

Do you ever wonder if you have it in you to get through a crazy week?  I had planned to catch up on sleep and reschedule a few appointments for this week, but instead, a few coworkers have been out and I ended up working all 5 days this week instead of my usual 3 days.  Each day has been crazy because of our limited staff.  I am so ready for tomorrow night and for this week to be OVER.

On days like this, when I can barely stay awake after work, I wonder how people that work full time do it.  I mean, it's a normal thing to work 40+ hrs a week, right?  Why can I barely handle 24, even when to everyone else, it seems like I'm doing really well and it wouldn't be a big deal to work another 16 hours a week.

I recently saw a friend of mine, who has different issues, but has the same issues of wondering how to fit everything into what seems like a very tiring, jam packed week already.  I shared my holy grail explanation for what it's like to live with a chronic illness...




THE SPOON THEORY




Even if you don't know anyone with a chronic illness, you will someday, so you need to read this.  Also, if you're reading my blog, you at least sort of know me, so you need to read this.

Basically I wish this was required reading for the world.  Yes, my hair may be dirty somedays because I would rather be able to get through the day because I had an extra hour of sleep in the morning.  Driving to work, forgetting to take medication, going out with friends, are all at a cost.   I am always prioritizing sleep over anything else.  I turn down invitations to go out with a friend for sleep.  I don't sleep well on days I have to work because I'm worried about getting up on time, so on my days off, I sleep the days away sometimes.  (ok, most of the time)

How do you explain your chronic illness?  Do you have another suggestion of how to get the point across?





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