I have posted this many times, but only because I think it is so important and different points come up over and over again as I continue to struggle with my health. I have this posted on my bulletin board at work, it is a helpful reminder of the things I have the right to expect, and reminds me not to walk away when there is something I need to fight for. The second to last point has always made me cry every time I read it - it's that powerful. To learn more about the Pituitary Network Association, click on the link below.
What do you go back to over and over again? Is there something that means so much to you that you share it every chance you get? How do you react to this?
What do you go back to over and over again? Is there something that means so much to you that you share it every chance you get? How do you react to this?
PATIENTS BILL OF RIGHTS![]() PREAMBLEThe Pituitary Network Association (PNA) is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them. PNA was founded in 1992 by a group of acromegalic patients in order to communicate and share their experiences and concerns. PNA has rapidly grown to become the world's largest and fastest growing patient advocacy organization devoted to the treatment and cure of pituitary disorders.PNA is supported by an international network of the world's finest physicians and surgeons. Our goal is to reach every patient who may be forgotten, abandoned, or worse yet, undiagnosed after many years of suffering. We are doing this in three ways: (1) By providing public awareness programs and educational seminars, (2) By assisting the medical community in developing uniform standards for early diagnosis, surgery, radiation, pharmacological treatment and follow-up, and (3) by having interactive Web sites and referral program on these Web sites. OUR RIGHTS
What do you go back to over and over again? Is there something that means so much to you that you share it every chance you get? How do you react to this?
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