Happy Mother's Day!

Over the last few years, through all of my heath struggles, my mom and grandmother have been there for me more than anyone else. My mom has been to almost every doctors appointment, and spends days at the ER with me. She is the one to I usually go to when I need to cry (which it often), or share happy news (which is rare these days). I don't know what I would do without her!

Happy Mother's Day, Mom!

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Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time. I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood. Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post. To start - let's go back to June 2018. My grandmother died. She lived a wonderful long life, but it was especially hard on me. She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer. In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself. Yeah, you read that right. The day after re

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As many of you know, things haven't been that great with my health lately. I just had an appointment with my endocrinologist at MGH that was very informative, although not very exciting. My ACTH levels have increased dramatically since a few months ago. This is to be expected after a BLA and since I likely have tumor tissue left in my pituitary gland, this wasn't too surprising. She seemed a little concerned about this recent increase and took a look at my MRI from July. I hadn't actually seen the images, I just read the radiologist's report that said everything looked normal considering the 2 surgeries. She thought my pituitary stalk looked pretty enlarged (the stalk comes up vertically from the gland and connects it to the hypothalamus). This could be because I have tumor growth, which would make sense because of the increased ACTH. She is going to have my neurosurgeon look at the MRI to see what he thinks, at the very least this increases my MRI intervals to

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Life with Chronic Illness

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