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Showing posts from July, 2013

Mini Vacation to MV

From Thursday to Monday, I was visiting my Aunt's house in Martha's Vineyard with a few friends.  I had a great time, and wanted to share some pictures with you!









We saw 2 sunsets, got a few items off MV bucket lists (backdoor donuts being one, and no, it's not as dirty as it sounds).  We went to the beach almost every day, and I got some great color by accident (I used some expired sunscreen).  I got to swim almost every day, one day we even swam way out to a sand bar, and back in.  A lot of exercise!  I even managed to sneak in some water aerobics exercises. All in all, it was a great trip.  The only thing I didn't do that I wanted to was pick up a black dog collar or leash for Huck, who is coming home on Saturday!  I expect my blog to be flooded with puppy pictures over the next few weeks!

Guess Who's Coming Home Next Week?

HUCK!


Any suggestions for me?  I can't wait!!! Many more pictures to come soon!

Mood Swings

It's official - the Cushing's mood swings are definitely back.  I have cried for no reason, I've been mad at my family for no reason, and I just am having a hard time dealing with people.  The last time my emotions were this unpredictable was right after my second pituitary surgery, which seemed to make my Cushing's symptoms worse.  In just a few weeks after that surgery, I gained almost 20 lbs.  I haven't seen the rapid weight gain yet, but I have had flushed cheeks and a red spot under my chin, acne, darkening of scars and stretch marks, worsening insomnia, curlier hair, and of course, the mood swings.

I have one more 24 hr urine to do, I am going to try to do that on Sunday while I am still having all of these symptoms, and hopefully those results will show what I already know, that Cushing's is back once again.  I feel like after 3 surgeries, 2 that were not successful, and the 3rd which helped relieve all of my symptoms for almost 2 years, this is the har…

Doctors That Become Patients Themselves

I recently read a great entry that was written by a medical student, who thought she understood what being ill felt like, until she fell ill herself.  I'm sure most people understand that it sucks to have a cold, but don't realized the debilitating effects it has on someone who is chronically ill.  I do not remember what "well" feels like.  I can't remember the feeling of being able to walk or run up a staircase without holding on for dear life to the railing.  I don't remember being able to relate to normal people who aren't ill.  I wish I could say I remember what being well feels like, and that's what I'm aiming for, but all my mind can grasp is how hard the walk to work from the parking lot is that early in the morning, and how hard it is to shift my weight back to my feet after a long drive, and how exhausted I am at all times, despite sleeping until 3 in the afternoon some days.

This article was very validating to read, as someone who sits …