Skip to main content

Mood Swings

It's official - the Cushing's mood swings are definitely back.  I have cried for no reason, I've been mad at my family for no reason, and I just am having a hard time dealing with people.  The last time my emotions were this unpredictable was right after my second pituitary surgery, which seemed to make my Cushing's symptoms worse.  In just a few weeks after that surgery, I gained almost 20 lbs.  I haven't seen the rapid weight gain yet, but I have had flushed cheeks and a red spot under my chin, acne, darkening of scars and stretch marks, worsening insomnia, curlier hair, and of course, the mood swings.

I have one more 24 hr urine to do, I am going to try to do that on Sunday while I am still having all of these symptoms, and hopefully those results will show what I already know, that Cushing's is back once again.  I feel like after 3 surgeries, 2 that were not successful, and the 3rd which helped relieve all of my symptoms for almost 2 years, this is the hardest reoccurrence to deal with.  I'm not sure if it's because I still look like myself, just a few pounds heavier, or that I know that there is no easy answer to fix this, or because it's harder for people to understand since I've learned that most people have stopped listening.

I'm not sure to address this at work yet, to warn people, and explain why I might be extra sensitive, or if it would just bring added drama that I don't need.

What would you do?

Comments

  1. I'm so sorry! I'm just being diagnosed after seventeen years of symptoms. I'm Episodic so doctors failed me for half of my life. Will you get a BLA this time?

    ReplyDelete
  2. i have actually already had a BLA, so next step if i do have cortisol production would be an ablation of any rest tissue we find.

    ReplyDelete
  3. Ugh... not again. I can imagine the frustration because its such a hard thing to diagnose (even if its again) :(

    For work, if it were me, I'd tell my boss that you're dealing with medical issues (s/he doesn't have to know the details if you aren't close) you can even tell him you're on some new meds that are doing some funky things with your body and hormones right now. While its not entirely the truth, sometimes thats easier to explain than the complications and ins and outs of a pituitary tumor. I'd also alert anyone that you're close with at work. Then if you're having a really hard day they can be prepared and cover for you or help you. I'd tell them on one of your good days that way they won't be completely caught off guard when you have a really bad day. And you can even tell them you don't want EVERYONE else to know.

    Its a lot of work trying to act 'normal' and keep it together when your body is so far from it. You need a few people to lean on when you can't do it on your own.

    I think that was hardest for me when I was so sick. I'm very independent and very quick to pick up the slack when others fall short etc. asking for help and learning to adapt to others doing things for me was a struggle. And also learning that not everyone understands what its like to be SICK. Cancer is about what most people think of when they think of being really really sick.... but in a lot of ways, cushings is worse/harder than cancer.

    Try not to bear the whole weight of the diagnosis and symptoms by yourself. It really helps just to let it out. Give yourself a break when you're having a crying day. You've had the strength to get through this before. You'll do it again. -- Praying for you.

    ReplyDelete

Post a Comment

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.

Cushing's Awareness Challenge - Day 8 - Happy Birthday Harvey Cushing!!!

Today is Harvey Cushing's Birthday, therefore, today is Cushing's Awareness Day.

To learn more about Cushing's, watch this video made by an endocrinologist.



To watch Harvey Cushing in surgery, watch this:




Happy Cushing's Awareness Day!