Skip to main content

Long Overdue Update

August, September, and now October have been so busy!  I have been spending most of my time away from work with Huck, which has been clearly very time consuming.  He is growing so big and learning  how to behave.  Just tonight, he was playing with us in the living room and was standing on the couch waiting for a toy to be thrown.  I asked him to sit and he backed up so his bottom was against the back of the couch, but obviously still standing.  I asked him to sit again and he looked at me like I was nuts, he clearly doesn't understand that his bottom being on something is not exactly what we mean by sit.

He has already been to the vet emergency room, for a shoulder injury, and we have had to call the vet multiple times.  Huck seems to be accident prone already, he clearly takes after his human mom.

I have had a few more kidney stones, which are less than pleasant, and am still having weekly allergy shots.  I have an endocrine appointment coming up at the end of October, and have a lot of labs to do before that appointment.  I am hoping that someone can either figure out why I am having kidney stones if it's not the parathyroid tumor and not Cushing's, and why I am not absorbing medications the way I should be.  Despite being very careful about taking my thyroid medication alone, without food or other medications, my thyroid levels are horrible.

I was excited for the season premiers of all the fall TV shows, my favorites are Grey's Anatomy, Scandal, Modern Family, and many others.  (My TV love is out of control, but having a lot of time off over the last few years has allowed me to binge watch shows on Netflix.)

For the first time in at least 10 years, minus the week after brain surgery, I am NOT WORKING Thanksgiving OR Christmas!  This is the most exciting thing.  I get to actually see family and not mess up other people's plans.

I am looking forward to seeing a lot of friends this winter for our annual NH trip, Huck will be joining me (hopefully) so my friends that don't live so close will finally be able to meet him.  I hope all of you are enjoying the fall, I can't wait for snow and cooler temps, mostly to break out boots and leggings!  Huck loves leaves so we are having a little problem with him bringing them back inside after I take him out for a walk or bathroom break.  We'll see if this stops when all the leaves are on the ground.  Maybe they will lose their appeal!


Coming up soon:
A long overdue book review of "How to be a Friend to a Friend Who's Sick"
An endocrine update after my appointment at the end of the month
Pictures of recent events, Huck, and me!
A 4 year since my diagnosis of Cushing's update

Looking forward to posting more often!



Labels:

Comments

  1. Kate @ Another Clean SlateNovember 15, 2013 at 1:31 PM

    I've heard great things about that book. Will be interested to hear what you think. Hope you enjoyed NH!

    ReplyDelete

Post a Comment

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…
Post a Comment
Read more

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland.

I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha…
5 comments
Read more

Cushing's Awareness Challenge - Day 23 - The Diagnosis and Treatment Process of Cushing's Disease

For many people with Cushing's it takes months, years, or even decades before finally getting a diagnosis and help.  For me, it was 5 years from when I thought I had Cushing's until my endocrinologist told me I did indeed, have Cushing's Disease.

Once you read about Cushing's and think it sounds just like you, here's what you will have to do to get rid of the excess ACTH or Cortisol source

1. Find a reputable endocrinologist that other people with Cushing's have had good luck with.  You can find a list on Cushing's Help HERE.  You can also ask someone that has been diagnosed on the Cushing's Help boards or on the Facebook group which doctors they see.

2. Make and appointment, and be patient!  Sometimes the endocrinologist has to do multiple tests over a period of time, and those results can take a while to come back.  Some tests to expect are 24 hr urine free cortisol tests, midnight salivary tests, dexamethasone suppression tests, or random/midnight se…
1 comment
Read more