Skip to main content

GuacaMOLE

I have a TON of moles, and have since I was a kid.  I have kind of neglected my dermatologist over the last few years, mostly because I have been busy at MGH with Cushing's and parathyroid tumors and MEN-1 stuff.

I finally made an appointment, and got in fast due to a cancellation.  A few spots that I had concerns about were no worry to here, but I did have a few small spots that were pretty dark, so she decided to biopsy a newer one.  It came back with abnormal cells so the area around it will have to be removed.  My dermatologist had to reschedule so I'll have that done in January.  I have about 10 other spots like this one, that will all have to go at some point.  My endocrinologist thinks that these new ones might be due to high ACTH, but they wouldn't be abnormal if that was the case.  I am definitely noticing more and more moles/freckles in the last year or two, and I am generally careful about my sun exposure, but absolutely let it slip this past summer, and was in the sun a lot, but tried to be diligent with sunscreen.

I have tried to find sunscreen that physical SPF instead of chemical.  I try to limit my exposure to any hormone disrupters, because I have enough of that going on!  If you have any recommendations that don't leave your whole body with a white cast, let me know!

Comments

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland.

I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha…

Keeping in Touch

I have found it harder and harder to keep in touch with friends lately. I feel like it should be the opposite, with these smartphones in our hands 24/7, but I just feel more isolated.

A big part of the problem it is that I live at least an hour away from most of my friends, if not more.  There's not a lot of friends that I can call last minute to say "Hey, want to do something?".  Any activity takes more planning, more effort on both sides.  I often hesitate to plan something too far in advance because I'm worried I might have to cancel if I don't feel up to it.

I tend to plan more group events where I have the control, like yearly trips to Martha's Vineyard (which is so so soon!), where I usually have my own car, and it tends to be a slower paced weekend.  I won't inconvenience anyone when I need to take a break.

I need to make more of an effort, I know that.  And if I cancel on you once or twice, don't take it personally.  It's probably just be…