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Showing posts from April, 2014

Confusing Doctors

This year, FINALLY, I had a few months appointment free over the summer.  I took the summer off because constantly using days off for appointments and trying to figure out what's going on inside my body is exhausting.  It takes up my mind every free moment.  It's just hard to do for 9 years without a break.

This fall, things were kind of quiet.  A few appointments here and there, but mostly good things were happening, weight loss, researching growth hormone replacement (more on that later), and trying to improve quality of life, instead of fixing problems.
That changed big time this winter.  I started having this dull, intermittent abdominal pain.  I was falling asleep every afternoon, even after sleeping 10 hours each night.  Something just felt off.  
Then, I turned yellow.  I noticed it a month or two ago, but no one else seemed to notice.  I mentioned it to a few people, and then one of my coworkers mentioned that the whites of my eyes were yellow.  I saw a nurse practiti…

Why I Blog about My Health

As you may have noticed, I have chosen not to do 30 blog posts in April for Cushing's Awareness this year.  I had a lot going on, and found it difficult to not repeat so many posts last year.

I am asked why I blog about Cushing's a lot.  Why would someone post so many personal details (especially health related details) out for anyone to see?

I blog about Cushing's, and the aftermath because it has totally taken over the last 10 years of my life.  I blog about Cushing's because no one should have to wait 6, or 10, or 20 years for an answer.
I blog about Cushing's because when I knew what was wrong, no one else had ever heard of it.
I blog about Cushing's because it's not a small, easy thing to conquer.
I blog about Cushing's because there are people that I see every day that likely should be tested for Cushing's.
I blog about Cushing's because even some of the endocrinologists I've seen didn't know what the best tests were for Cushing…