Skip to main content

Why I Blog about My Health

As you may have noticed, I have chosen not to do 30 blog posts in April for Cushing's Awareness this year.  I had a lot going on, and found it difficult to not repeat so many posts last year.

I am asked why I blog about Cushing's a lot.  Why would someone post so many personal details (especially health related details) out for anyone to see?

I blog about Cushing's, and the aftermath because it has totally taken over the last 10 years of my life.  I blog about Cushing's because no one should have to wait 6, or 10, or 20 years for an answer.
I blog about Cushing's because when I knew what was wrong, no one else had ever heard of it.
I blog about Cushing's because it's not a small, easy thing to conquer.
I blog about Cushing's because there are people that I see every day that likely should be tested for Cushing's.
I blog about Cushing's because even some of the endocrinologists I've seen didn't know what the best tests were for Cushing's, and multiple, not one test, are required before you rule it out.
I blog about Cushing's because it's such a life altering thing to go through, you can't possibly make it through without support.


Why do you blog?

Comments

  1. I agree 100%. I blog (and follow others like you) so that when people crawl the internet looking for answers they may find a little hope when there isn't much else out there... and know that they aren't alone in this seemingly deserted fight. Keep fighting until you find the end! :)

    ReplyDelete
  2. I am glad you and others like you blog about Cushings and other disorders. It helps people find out about these things where before they'd never know.

    ReplyDelete

Post a Comment

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland.

I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha…

Keeping in Touch

I have found it harder and harder to keep in touch with friends lately. I feel like it should be the opposite, with these smartphones in our hands 24/7, but I just feel more isolated.

A big part of the problem it is that I live at least an hour away from most of my friends, if not more.  There's not a lot of friends that I can call last minute to say "Hey, want to do something?".  Any activity takes more planning, more effort on both sides.  I often hesitate to plan something too far in advance because I'm worried I might have to cancel if I don't feel up to it.

I tend to plan more group events where I have the control, like yearly trips to Martha's Vineyard (which is so so soon!), where I usually have my own car, and it tends to be a slower paced weekend.  I won't inconvenience anyone when I need to take a break.

I need to make more of an effort, I know that.  And if I cancel on you once or twice, don't take it personally.  It's probably just be…