Skip to main content

July Update

I took a little blogging hiatus recently, as my life seemed to turn upside-down.

Earlier this month, a little boy who was near and dear to me passed after a brief, but serious illness.  It shocked everyone that knew this family. I worked for them for 2 years right after college, and was even present when their daughter was born.

Huck has now been with me for a whole year!  We took him home July 27th last year, and he is about 20lbs heavier, 8 inches taller, and a whole lot smarter. Here are some recent pictures of him!




And of course, it wouldn't be a blog post if not for some more health problems.  I have become increasingly jaundiced, with my liver function tests rising each time I have them checked.  This may be caused by one of the medications that is being used to treat Lupus.  Heading to MGH every 2 weeks for labs and appointments has not been so fun.  I am also getting back to testing for rest tissue, as I have not needed florinef for a few weeks, which I usually would need to prevent my sodium from becoming very low.  I will do a 24 hr urine free cortisol test soon, along with some imaging after my next endocrine appointment in October.

For some good news, I will be featured in a Mass General publication on adrenal issues in the near future!  My adrenal surgeon called on a Saturday a few weeks ago asking for before and after pictures from my adrenalectomy.  I will be sure to share when it is published.


Labels:

Comments

  1. Wanda BatesAugust 8, 2014 at 7:30 AM

    I'm sorry to hear about the passing of your young friend. It's hard to make peace with it when a young person passes.

    ReplyDelete

Post a Comment

Popular posts from this blog

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.

Post a Comment
Read more

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…
4 comments
Read more

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…
Post a Comment
Read more