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July Update

I took a little blogging hiatus recently, as my life seemed to turn upside-down.

Earlier this month, a little boy who was near and dear to me passed after a brief, but serious illness.  It shocked everyone that knew this family. I worked for them for 2 years right after college, and was even present when their daughter was born.

Huck has now been with me for a whole year!  We took him home July 27th last year, and he is about 20lbs heavier, 8 inches taller, and a whole lot smarter. Here are some recent pictures of him!




And of course, it wouldn't be a blog post if not for some more health problems.  I have become increasingly jaundiced, with my liver function tests rising each time I have them checked.  This may be caused by one of the medications that is being used to treat Lupus.  Heading to MGH every 2 weeks for labs and appointments has not been so fun.  I am also getting back to testing for rest tissue, as I have not needed florinef for a few weeks, which I usually would need to prevent my sodium from becoming very low.  I will do a 24 hr urine free cortisol test soon, along with some imaging after my next endocrine appointment in October.

For some good news, I will be featured in a Mass General publication on adrenal issues in the near future!  My adrenal surgeon called on a Saturday a few weeks ago asking for before and after pictures from my adrenalectomy.  I will be sure to share when it is published.


Comments

  1. I'm sorry to hear about the passing of your young friend. It's hard to make peace with it when a young person passes.

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