Skip to main content

Adrenal Crisis

I woke up Saturday morning not feeling well.  I had been shaky all night, but didn't know why.  I woke my mom up and asked her to take me to the ER after vomiting.  Instead of driving 45 minutes to Mass General, I decided to have her take me to a closer hospital that I usually go to for things like kidney stones, that are easy to deal with and not life threatening.  I also had my appendix out here 3 months ago.

I had a fever of 102+, and they immediately started giving me fluids, steroids, and zofran for nausea.  My blood pressure has been below 90/50 the entire time I have been here except after eating for the first time last night.

Of course, as things usually go when I end up in an ER, I was admitted.  First, I had a roommate that didn't stop coughing, but when she did, she would feel the need to fill in the silence with talking, and not just your basic roommate small talk, but how she was hallucinating.  My mom asked for a different room and now, I have a big room to myself. I guess I was the 3rd person that day to ask to get out of that room.

So, the plan today is to monitor my heart and BP, decrease my IV fluids to see if it helps with the swelling, and maybe more steroids if I need them.  Just another day in the hospital.  So much for only being admitted once this year, clearly I spoke too soon!


Labels:

Comments

Post a Comment

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood. Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post. To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer. In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after re
Post a Comment
Read more

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland. I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha
5 comments
Read more

Yet another health update...

As many of you know, things haven't been that great with my health lately.  I just had an appointment with my endocrinologist at MGH that was very informative, although not very exciting.  My ACTH levels have increased dramatically since a few months ago.  This is to be expected after a BLA and since I likely have tumor tissue left in my pituitary gland, this wasn't too surprising.  She seemed a little concerned about this recent increase and took a look at my MRI from July.  I hadn't actually seen the images, I just read the radiologist's report that said everything looked normal considering the 2 surgeries.  She thought my pituitary stalk looked pretty enlarged (the stalk comes up vertically from the gland and connects it to the hypothalamus).  This could be because I have tumor growth, which would make sense because of the increased ACTH.  She is going to have my neurosurgeon look at the MRI to see what he thinks, at the very least this increases my MRI intervals to
2 comments
Read more