Skip to main content

Another Day, Another Hospital Stay

This week, my heart rate has been over 100 since Monday.  I saw my PCP's office twice, once for labs and a vitals check, and the next for a visit, EKG, and 24 hour monitor.  Everything but the EKG looked fine, the monitor showed a normal, but fast, rhythm, averaging at 100, but peaking at 150.  Usually, my heart rate is in the 50's.

Friday, after having not a lot of answers from anyone, I had worsening shortness of breath, and couldn't walk the shortest distance without sitting down or taking a break.  I left work to go to the ER at MGH after talking to my endocrinologist.  I have had lab abnormalities for about 3 weeks, and this would be a good opportunity to investigate more.

So, I spent 1 night on the ER observation floor, got lots of monitoring, some walks which showed that my oxygen levels went down significantly with activity, a chest CT to rule out a blood clot in my lungs despite a normal D-Dimer, and some sugar and insulin to attempt to draw potassium out of my blood stream.  That lead to a blood glucose level of 40, lots of sweating, gingerale, and graham crackers.  Not the greatest feeling.

I had done some research on my own to try and see if there were any tests that we were missing. Sure enough, the first search result was a condition called methemoglobinemia, and I take two medications that can cause this condition.

I mentioned it to the new doctor on the floor I was admitted to this afternoon, and after the CT came back clean, she agreed that this was a logical next step, because I couldn't have an echocardiogram or see cardiology until Monday.

The test for this is an arterial blood gas.  Talk about uncomfortable!  The doctor tried twice, but didn't want to try a third time tonight.  We will try it again tomorrow after some fluids and steroids.

This is so frustrating because I had just used up all my sick days for my last admission right before Christmas, and this shortness of breathe is not something I can live with.  I can deal with a lot of discomfort, pain, even kidney stones and get by going to work, but this is unbearable.  I can't live my daily life, I can't take Huck for walks, or even out to the sidewalk, I can't work, I can't even walk to the restroom without some help.  Hopefully answers and solutions will come in the next few days.  Otherwise, I am stuck here.


Comments

  1. Oh Danielle I am so sorry to hear your news. You are a smart and strong young woman. You will get through this.I will keep you in my daily prayers. ♥

    ReplyDelete

Post a Comment

amazon audible

Popular posts from this blog

Cushing's Awareness Challenge - Day 9

The only potentially permanent treatment for Cushing's is surgery.  Whether you have a pituitary tumor, adrenal tumor, or ectopic source of ACTH, most often, you will eventually need surgery.

For me, the first step was a pituitary surgery to try to remove the tumor in my pituitary gland. They went through my nose to access the pituitary gland, which means you have no visible scars after.
I was very nervous heading into the surgery, but didn't have much time to dwell on it, as my surgery was scheduled about a week after my IPSS.  I talked to a lot of people before, about their experiences, and heard vastly different stories from each person.
The only thing I remember from before my surgery was being rolled down what looked like a basement hallway (all concrete), while passing maybe 30 operating rooms.  I saw patients in the hallways on stretchers waiting for surgery, I saw into the small windows in the doors to operating rooms, it was a very scary experience.  Obviously, not ev…

Cushing's Awareness Challenge - Day 4

I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?  
It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.
Maybe my life would be easier.
But, maybe this would not be true.  I am not looking to find out.  Chronic illness is lonely.  It seems, from the outside, that cancer is not.  Most people know someone with cancer.  Most people know what cancer involves.  Endless appointments, surgeries, maybe even chemotherapy or radiation.  Cancer is life threatening. Did you know that a lot of chronic illnesses involve all of the same things?  
With Cushing's, a lot of people have multiple surgeries.  I have had 3 directly related to Cushing's, and…

Cushing's Awareness Challenge - Day 12

Today's post is a little bit out of my comfort zone. We're going to talk about weight.
One of the most common symptoms of Cushing's is weight gain.  Some people only gain 30 pounds, some gain hundreds.  I always have a hard time quantifying the exact amount I gained because I was a teenager, or even a young child when I first had Cushing's symptoms.  My best guess is about 150 pounds, only because that is close to what I've lost after treatment.  
When you weigh almost 300 pounds, people treat you differently.  I know this, because I've also seen how people treat me now.  
I was obese, due to Cushing's, throughout college. In my opinion, this is one of the most difficult times to be heavy. My first year of college, I was often left out of plans.  My two roommates were very close, and I always felt like the third wheel.  One of them even left a letter she had written to a friend out for me to see.  It was one of the cruelest things I had ever read.  She was wis…