Today is Rare Disease Day! It is recognized internationally, and is becoming more well known in the US. Having a rare disease is not easy. For many, it takes way too long to just be diagnosed, then there is the issue of treatment. I can't even count on my fingers and toes the number of times I've had to explain my rare diseases to a doctor, or a nurse, or even friends and family. My rare disease is Cushing's Disease. I may also have carcinoid syndrome, but that is yet to be proven or officially diagnosed. I have included some links below to a few helpful articles and websites! 16 Reasons You Should Pay Attention to Rare Disease Day 24 Things People with Rare Diseases Wish Others Understood NORD
(Formerly known as Life with Cushing's)