Skip to main content

New Doctor

I saw a new doctor last week.  He is a neurologist, but only practices part time due to other obligations.  He spent over 3 hours with me going over my medical history from birth to present.  We talked about how long I went before I was diagnosed with Cushing's Disease, but how pathology from my pituitary gland never showed a tumor.  He mentioned carcinoid tumors, and we talked about how many times that has been mentioned, as a possible cause to some of the strange symptoms I've had over the years since my adrenalectomy.

There have been a number of abnormalities on imaging studies in the last 2 years, so we went over each of those.  His hunch is that I do have a carcinoid tumor, and it's probably in/near my residual thymus tissue that recently showed some enlargement.

I am looking forward to working with him over the next few months to try and find a cause for the shortness of breath and fatigue.



Labels:

Comments

Post a Comment

Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…
4 comments
Read more

Cushing's Awareness Challenge - Day 29

Post a Comment
Read more

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.

Post a Comment
Read more