Today is Rare Disease Day! It is recognized internationally, and is becoming more well known in the US. Having a rare disease is not easy. For many, it takes way too long to just be diagnosed, then there is the issue of treatment. I can't even count on my fingers and toes the number of times I've had to explain my rare diseases to a doctor, or a nurse, or even friends and family. My rare disease is Cushing's Disease. I may also have carcinoid syndrome, but that is yet to be proven or officially diagnosed.
I have included some links below to a few helpful articles and websites!
16 Reasons You Should Pay Attention to Rare Disease Day
24 Things People with Rare Diseases Wish Others Understood
NORD
I have included some links below to a few helpful articles and websites!
16 Reasons You Should Pay Attention to Rare Disease Day
24 Things People with Rare Diseases Wish Others Understood
NORD
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