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Rare Disease Day 2016

Today is Rare Disease Day!  It is recognized internationally, and is becoming more well known in the US.  Having a rare disease is not easy.  For many, it takes way too long to just be diagnosed, then there is the issue of treatment.  I can't even count on my fingers and toes the number of times I've had to explain my rare diseases to a doctor, or a nurse, or even friends and family.  My rare disease is Cushing's Disease.  I may also have carcinoid syndrome, but that is yet to be proven or officially diagnosed.

I have included some links below to a few helpful articles and websites!



16 Reasons You Should Pay Attention to Rare Disease Day

24 Things People with Rare Diseases Wish Others Understood

NORD






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