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Showing posts from April, 2016

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland.

I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha…

ENDO 2016

Great news - I will be going to ENDO 2016 this weekend!  I was unable to go today due to work, but I will be there tomorrow and Saturday at the CSRF booth. Come say hi if you will be there!

Cushing's Support and Research Foundation



I have been a little sick recently with a cold, and today I ended up leaving work in an ambulance yet again.  It was right before my lunch hour, and I started feeling a little dizzy and faint, so I went to an exam room to relax for a few minutes.  I ended up just getting worse, even sweating through my scrub pants, and my face was BRIGHT red.  I was seen quickly in Urgent care, and they thought due to my medical history it was worth it to send me to the ER to have some labs and chest X-rays done.

I think this was all caused by a combination of things.
1. Dehydration
2. Hypoglycemia (I woke up late and rushed to work without eating, or even grabbing breakfast on the way)
3. Cold medicine - you know how some cold medicine (I'm talking about you Sudafe…