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Again?

I spent a few days on Martha's Vineyard with friends, as I have pretty much every summer since we were in High School and college. I wasn't feeling my best, but didn't want to slow anyone down, so I think I pushed myself a little bit too hard.  I had a wonderful time, but when it was time to go back to work last Wednesday, I was feeling awful.

It seemed as if the same shortness of breath and high heart rate that happened in January 2015 was happening again.  Just to clarify, there is a "daily" level of shortness of breath that I've sort of gotten used to, and then there's the shortness of breath that happens occasionally that prevents me from even standing for more than a few seconds.  This time, it was the second.

I decided to try to go to work as usual, because maybe it would get better as the day went on.  Instead, I ended up leaving work at 11:30 to drive myself to MGH.  I spent most of the day in the ER, but they didn't figure anything out or treat me.  So here I am, a week later, still living from the couch, waiting for pulmonary appointments and call backs from all of my doctors.

Once again, I feel like medicine has failed me.  I am searching for answers myself, I combed through every single lab result, image report, and more to see if maybe I missed something.  This shouldn't fall on my shoulders, someone from my medical team needs to be fighting this with me.  It just doesn't feel like I have that at the moment.  We tried talking to patient advocacy and all that did was cause these doctors to focus on covering their butts instead of focusing on the actual problem.

So, until we get some answers or this just magically gets better, I'll be here, probably watching the olympics all week. If you have any ideas, please leave them in the comments.  Thanks for "listening".

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