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Cushing's Awareness Challenge - Day 13

Did you know other people are blogging for Cushing's Awareness this month?  This blogger needs your help!

 Cushing's with Moxie: Fighting The Worst Disease You've Never Heard Of

Melissa has one of the most viewed Cushing's Blogs!  She is looking for your before and after photos to include in a video presentation about Cushing's.  Go help her out!

I take medication every single day to stay alive.  At 24 years old, it was one of my main complaints after my BLA.  Of course, I had taken medicine before that, even taken medication every day before that, but my life didn't depend on it.

I remember one of my first outings after my BLA, with my mom, sister, and brother.  We went apple picking.  I rarely carried a bag or purse at this time.  I had a toddler style meltdown when I realized I had to carry my bag with me.  It was less about the bag, more about this new consequence of the surgery that saved my life.

After a BLA, you are given prescriptions not only for your daily steroids (cortef and florinef), but also an emergency injection kit in case of emergency.  This is no ordinary pen style injection.  As you can see in the photos below, you have to mix it yourself, pop the top off, then draw it up, then finally, inject it.  Not the easiest thing to do when you are in a questionable state.

I also keep this bag, with all supplies in it. (My mom keeps on in her bag too!) That way, someone who sees my medical alert bracelet, will know what to grab. You can buy this bag here, yes, it is expensive, but you can find coupon codes.  (Just search "zazzle coupon codes")

Now, I mostly keep it in my car, in my purse.  If I am going somewhere for the day, I will take it with me, and I always had it with me at work,  but when I'm running into stores, or to a friend's house, I rarely take it in with me, knowing it's just a few feet away is enough.





This is the bag I keep with me at all times




Alcohol wipe, needle, solu-cortef





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