Skip to main content

Cushing's Awareness Challenge - Day 16

Happy Easter everyone!

I spend a lot of my time with family.  Whether it's my mom, who I spend most of my free time with, or extended family, I typically enjoy spending time with family.

Today, about 30 members of that extended family are going to be getting together for Easter.  I do not celebrate Easter in the religious sense (although, typically it is a very religious holiday).  I have a hard time with faith.

My grandmother is a devout catholic, she even spent time in a convent as a teenager.  My mom was brought up in the Catholic Church, and I attended church regularly as a child.  I always had a hard time matching my love for science and faith, it seemed to me like the two things didn't really mesh well.  I stopped going to church when I was a teenager, and now don't go at all.

It is hard for me to justify that the things that have happened to me, like illness, were on purpose, or
"given" to me by some god.  I know lots of people who find faith in challenging times, where I feel like I lost what little faith I had.   My grandmother is always praying for miracles, but I don't believe they exist, at least not for me.

It is easier to believe that I was unlucky, and this didn't happen for any reason other than some less than ideal genes.


Labels:

Comments

Post a Comment

Popular posts from this blog

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.

Post a Comment
Read more

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…
Post a Comment
Read more

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…
4 comments
Read more