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Cushing's Awareness Challenge - Day 18

What should you do if you think you have Cushing's?

1.  Click the 3 lines you see in the upper right corner, scroll down about halfway, and take a look at some of those helpful websites.  Those sites are what got me to the right endocrinologist, and helped me through the testing phase.

2. Make an appointment with one of the endocrinologists you find on those sites.

3.  Make a list of symptoms to bring with you to your appointment.  I also brought tons of photos, that showed me before Cushing's, so your doctor can see the progression.

4. Test like it's your full time job.  Midnight salivary cortisol tests every night, 24 hr urine free cortisol tests a few times a week, take as many lab orders and supplies as your endocrinologist will give you.

5.  Repeat until you get a diagnosis.  You may have to repeat this process with multiple endocrinologists.

6. Reach out for support!  To me, or on a Cushing's Facebook group, or even on a website's forums. (Where my support system was originally started!)


(Image from CSRF.net - Drawing is reproduced from: Mayo Clinic Family Health Book, 2nd Edition, 1996)



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