Skip to main content

Cushing's Awareness Challenge - Day 20

Many people with Cushing's do not have a supportive primary care physician.  They either don't believe their symptoms, or won't refer them to a specialist. I was fortunate enough to never have a problem with mine.  Although she didn't know much about Cushing's, she was willing to refer me to multiple endocrinologists. I have been going to the same practice since I was born, and now, due to insurance issues, I will have to switch.

Thankfully, my new PCP will be at MGH, where I receive the rest of my care.  I am a little nervous to  "start over" with someone else, but am sure that it will be more convenient for everything to be in the same place.  Although, I am not looking forward to having to drive 45 min -1 hour if I have a sore throat and need a throat culture. I hope I can be as involved with my care as I have been, I love to participate in the diagnostic process, and sometimes even make the diagnosis myself (like with Cushing's).  

I am also planning on writing letters to my old PCP and her office, and how grateful I am for her flexibility.  

Have you ever had to switch PCPs?  How did it go?  

Comments

Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…

Cushing's Awareness Challenge - Day 29

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.