Many people with Cushing's do not have a supportive primary care physician. They either don't believe their symptoms, or won't refer them to a specialist. I was fortunate enough to never have a problem with mine. Although she didn't know much about Cushing's, she was willing to refer me to multiple endocrinologists. I have been going to the same practice since I was born, and now, due to insurance issues, I will have to switch.
Thankfully, my new PCP will be at MGH, where I receive the rest of my care. I am a little nervous to "start over" with someone else, but am sure that it will be more convenient for everything to be in the same place. Although, I am not looking forward to having to drive 45 min -1 hour if I have a sore throat and need a throat culture. I hope I can be as involved with my care as I have been, I love to participate in the diagnostic process, and sometimes even make the diagnosis myself (like with Cushing's).
I am also planning on writing letters to my old PCP and her office, and how grateful I am for her flexibility.
Have you ever had to switch PCPs? How did it go?
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