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Cushing's Awareness Challenge - Day 21

I always struggle with what to say, or how much to say, about my chronic illnesses.  Someone might make a comment like, "You look so tan!  Have you been on vacation?"  and I am not tan from the sun, I am tan because of my rising ACTH levels, or maybe because I am jaundiced.  I sometimes have given the full, real answer to people I encounter in a hospital setting, like lab techs, or nurses, but what do I say to everyone else?

I have the same trouble when people ask how I'm doing.  I have a hard time being honest and saying I feel horrible, all the time.  My canned answer is always "I'm OK".  How much do you tell people?  And really, how much do they want to know?  Are they looking for the full story, or just asking out of politeness?

How do you face these challenges?   How much do you disclose?


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