Skip to main content

Cushing's Awareness Challenge - Day 24

What do you think of when you imagine someone who is disabled?  Do you picture someone in a wheelchair?  Or someone who uses another mobility aid?  I'm guessing, if you are reading this blog, that might not be the first image that comes to mind.

So many people around the word have invisible illnesses, many of those illnesses can be disabling.  For me, it is not one illness alone that can be disabling. It is the combination of many, and maybe even medication side effects also.  But, no one would know from the outside that anything is wrong with me.

My doctors know, they are the ones who suggested I might benefit from a handicap placard, not to be used always, but on the days where I have the most fatigue, trouble breathing, or joint stiffness.

My friends and family are aware of my invisible illnesses, they are the ones who pick up on the blue tinge to my finger tips and lips when I am walking, and suggest slowing down, or even sitting to take a break.

I also think this is where I am challenged the most by my illnesses, it's not because of any symptom, or any surgery, but having to prove that I am sick, to doctors, or my previous employer.


Comments

Popular posts from this blog

2 Years Since my Adrenalectomy...would I do it again?

On September 2nd, 2010, I spent the day in one of the many operating rooms at MGH.  I had spent the night before talking and texting to friends and family, after seeing Wicked and going back to the hotel across the street from the hospital.  I cried a lot, because of the scary and fairly dangerous surgery ahead, because of the hope that this disease would FINALLY be behind me, and because of the long recovery ahead.  I woke up early and walked across the street with my mom, and my dad met us there.

The wait that morning was incredibly long, my 2 other surgeries in the 9 months prior had been very early and a pretty short wait.  I cried some more (no one should be surprised by this), and finally headed into the prep room.  I met with my surgeon one last time, and kissed my parents one last time.  As I waited in the cold, dark, cement hallway outside the numerous operating suites, a surgical resident marked the incision sites.  I knew there would be many small incisions, but having the…

Cushing's Awareness Challenge - Day 4

I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?  
It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.
Maybe my life would be easier.
But, maybe this would not be true.  I am not looking to find out.  Chronic illness is lonely.  It seems, from the outside, that cancer is not.  Most people know someone with cancer.  Most people know what cancer involves.  Endless appointments, surgeries, maybe even chemotherapy or radiation.  Cancer is life threatening. Did you know that a lot of chronic illnesses involve all of the same things?  
With Cushing's, a lot of people have multiple surgeries.  I have had 3 directly related to Cushing's, and…

Cushing's Awareness Challenge - Day 29