My appeal for social security disability was denied. I feel so defeated. But, will fight on, because what other choice do I have?
Many people with Cushing's, adrenal insufficiency, lupus, and other chronic illnesses cannot work due to their disability. It is not easy to apply for disability. There is a lot of paperwork involved, which can be hard emotionally to write about how much your illness limits you. You have to talk to all of your doctors, and get their support. Sometimes, even they will not understand the full picture.
My mom has said a few times in the past week, if people like me can't get approved, who is it meant for? I think people have a hard time believing someone as young, and as healthy LOOKING as me, could have such disabling illnesses. I have tried my hardest to continue to work. If it were up to me, I probably would still be working part time, and being hospitalized routinely because of it.
I made it through the entire winter, even with mono, without needing to be admitted. I think the only reason that happened was because I was not working. If I was still working, I would have worked through being sick, probably gone to the hospital, and spent two weeks recovering at MGH.
So, I will appeal again. I will get an attorney. I will fill out all the paperwork for a third time. Because my life might depend on it.