So, I've changed the name of this blog. I've been thinking about it for a long time, and Life with Cushing's didn't really make sense anymore. I don't have Cushing's at this time, and Life with Chronic Illness is a more accurate phrase to describe my life. Of course, this doesn't change the fact that Cushing's is still a big part of my life, and will continue to be a big part of my blog.
What do you think?
Onto today's post for the Cushing's Awareness Challenge...
As you may have read over the last week or so, I had a PET scan scheduled for yesterday. It didn't go as planned. I had been having insurance issues, and waiting for special approval to change plans even though it was outside of the window to do that this year. I called every day, waited on hold for up to an hour, and on Thursday, the approval came in. Just in time. Well, as usual, that was the end of my luck.
I arrived at MGH, and they started prepping me for the scan. The first red flag, they didn't make me change. They ALWAYS make me change (see the post from a few days ago!). I was thrilled, of course, but something didn't seem right. Then, the person getting me set up mentioned something about me only needing a portion of the regular dose of the tracer used. I questioned this in my head, but was still trusting. As he was escorting me back to the waiting room, he mentioned something about "figuring out the cause of these seizures". Wait a second...I don't get seizures!
I told him, he was wrong, I've never had a seizure, and he said he must have looked at the following patient's chart. I told him I was planning on having a PET scan of my entire body, or at least my chest to check for neuroendocrine tumors. I was having a PET scan on my brain! I think they tried to call my doctor, but he was unavailable. I ended up having the scan anyway, maybe I was mistaken!
I emailed him immediately following the scan to tell him what had happened, and maybe I was mistaken when I assumed the PET scan would be on my chest, or maybe my abdomen too.
I'm still waiting to hear back, but may have to go back for another scan, this time on the right body part. (Yes, I'm rolling my eyes!)