Skip to main content

Cushing's Awareness Challenge - Day 7

As you can probably tell, I spend a lot of my time at doctor's offices and hospitals. I always try to plan ahead and download books, podcasts, and music onto my phone so I have things to do while commuting to and from, and while waiting.

I thought I would list a few of my recent favorites so you can give them a try!  I find they help the waiting go by faster, and make me feel like it wasn't a waste of time.

Podcasts

1. Serial - I'm obsessed! Unfortunately, they haven't released the 3rd season yet.  If you haven't listened to seasons 1 and 2, this should be at the top of your list!  If not, try S-Town, another podcast produced by the same people. (Although, I wouldn't recommend listening to either before bed - you won't be able to stop!)

2. Tara and Johnny - As in, Tara Lipinski and Johnny Weir, figure skating royalty.  This is a lighthearted, fun podcast about their lives.  I laugh out loud (literally) during almost every episode.  I love this for commuting to appointments!

3.  DTR - if you are into the online dating scene, this is for you.  It is made by Tinder, and in one episode, they overhaul someone's profile to get more right swipes.  It may be a little inappropriate for some listeners, but totally relevant to a lot of people my age.

Books

1.  Everything We Keep by Kerry Lonsdale - I just finished this and am so sad it's over!  I couldn't put this down -it's about a young woman who loses her fiancĂ© in a boating accident in Mexico, and his funeral is on what would have been their wedding day. It has a lot of twists and turns, but isn't as "scary" as some other thrillers now. (I'm a wimp, I know) I am starting another book by the same author now!

2. When Breath Becomes Air by Paul Kalanithi -  This might be my all time favorite book. It is Paul Kalanithi's autobiography, which he wrote while he was suffering from cancer.  You will definitely need a box of tissues while reading.

3.  The Girl with the Lower Back Tattoo by Amy Schumer - This is a hysterical autobiography written by comedian/actress Amy Schumer.  Another one that I couldn't put down!  Although it is definitely funny, there are quite a few more somber subjects addressed.

Music

1.  City of the Sun - my favorite song is Explosions.  The music is all instrumental, but would hold any pop lover's attention.  I often listen to this kind of music in the hospital, it is calming, but uplifting, and won't disturb the person next to you like music with vocals might.

2. RaeLynn's Wildhorse album has been on repeat in my car for the last few weeks! My favorite songs on the album are Trigger and Lonely Call. She has such a pretty voice!

3. Apple Music - my most listened to Playlists are the A-Lists, whether it's pop, country, alternative, folk, singer/songwriter - you name it! I love finding what's new in music. I love having an easy way to access these songs with my monthly subscription.

What are your favorite things to do while waiting? Let me know in the comments below!




Comments

Popular posts from this blog

Plastic Surgery

When I was 17, I thought about getting a breast reduction.  I was still pretty thin at this point and it bothered me to by bigger clothes just to fit my bust.  I had a hard time exercising and always had back pain and grooves in my shoulders where my bra straps sat. I had a few consults with different plastic surgeons and ended up scheduling surgery for the week before my high school graduation.  I ended up "chickening out" because I didn't want the surgery to have any impact on my graduation, and I hadn't had any major surgeries before.  I started gaining weight due to Cushing's shortly after, so it worked out for the best in the end.

Now, my breast size has gone way down since I've lost weight, and even though they are still bigger than average, they don't get in my way as much and are more proportional to my body. These days, my plastic surgery dream is to have a tummy tuck.  I have a lot of excess skin on my body, especially on my belly, and in a drea…

Cushing's Awareness Challenge - Day 9

The only potentially permanent treatment for Cushing's is surgery.  Whether you have a pituitary tumor, adrenal tumor, or ectopic source of ACTH, most often, you will eventually need surgery.

For me, the first step was a pituitary surgery to try to remove the tumor in my pituitary gland. They went through my nose to access the pituitary gland, which means you have no visible scars after.
I was very nervous heading into the surgery, but didn't have much time to dwell on it, as my surgery was scheduled about a week after my IPSS.  I talked to a lot of people before, about their experiences, and heard vastly different stories from each person.
The only thing I remember from before my surgery was being rolled down what looked like a basement hallway (all concrete), while passing maybe 30 operating rooms.  I saw patients in the hallways on stretchers waiting for surgery, I saw into the small windows in the doors to operating rooms, it was a very scary experience.  Obviously, not ev…

The Challenges of Getting a Diagnosis

I have been asked about this so many times, and talk about it a lot, whenever someone asks me about Cushing's.  So many people have the same experience - KNOWING you have Cushing's, and seeing 5, 10, 20, or more doctors over the course of many years before you officially have a diagnosis.  I would say this is one of the most common links I have with other "Cushies".  We all fought for a diagnosis, heard we were just fat and depressed, waited with hope after every test, until a day came when one test came back high, or a brain MRI showed a tumor in the pituitary gland.

I think the reason I haven't written about it is because it's one of the hardest things to sit down and spend time on.  It's painful, and of course, I can't help but wonder what my life might be like today if I was diagnosed sooner.  Would I have needed an adrenalectomy?  Or for that matter, a second pituitary surgery? Would I have as many health issues after Cushing's?  It's ha…