The last month has been a little crazy, some good, some not so good.
On the good side, I surprised my brother for his birthday with a trip to Nashville! I coordinated with his girlfriend, and walked into the restaurant they were eating dinner at the night before his birthday. I think he was surprised, and we had a fun weekend together. I hadn't seen him since November.
My room has been painted and cleaned! Or maybe the other way around, cleaned and then painted. I am not a neat, organized person when it comes to clothes. I have too many, and probably half of my clothes are either too big, or too small from all these weight fluctuations. I gave away two big garbage bags of clothes to my neighbors (3 girls ranging from 14-25, and their mom). I'm still working on decorating, but I love the color!
I also volunteered at a 3 day conference for high school sophomores. I went to the same conference as a teenager, and met most of my close friends through volunteering. It was maybe too much for me, physically, but I enjoyed seeing a few friends, and seeing the delegates learn.
Every specialist, and my primary care, is now at MGH. It was hard having to leave my old practice, which I had been at since I was born, but like my mom pointed out, if I am sick, I might as well be at MGH anyway. I haven't been assigned a permanent primary care provider, but for now am being seen by medical students and whoever the attending is on the day of my visit.
On the not so good side, I was denied for a 2nd (maybe 3rd?) time for social security disability. Which means I hired an attorney and made a request for a hearing. The problem is, it can take months, or sometimes even years from now to actually have the hearing. It is a big stressor in my life, and I am scrambling until I get approved. I am lucky enough to be able to stay with my mom, but the parking and gas to get to and from MGH on a weekly basis is not cheap.
I have been having more shortness of breath with the hot weather. I still haven't had the chest PET scan, or gotten in touch with the doctor who is ordering that for me. I had an appointment with him at the beginning of June, but his office cancelled. I have left a few messages to reschedule, but still haven't heard back.
On the good side, I surprised my brother for his birthday with a trip to Nashville! I coordinated with his girlfriend, and walked into the restaurant they were eating dinner at the night before his birthday. I think he was surprised, and we had a fun weekend together. I hadn't seen him since November.
My room has been painted and cleaned! Or maybe the other way around, cleaned and then painted. I am not a neat, organized person when it comes to clothes. I have too many, and probably half of my clothes are either too big, or too small from all these weight fluctuations. I gave away two big garbage bags of clothes to my neighbors (3 girls ranging from 14-25, and their mom). I'm still working on decorating, but I love the color!
I also volunteered at a 3 day conference for high school sophomores. I went to the same conference as a teenager, and met most of my close friends through volunteering. It was maybe too much for me, physically, but I enjoyed seeing a few friends, and seeing the delegates learn.
Every specialist, and my primary care, is now at MGH. It was hard having to leave my old practice, which I had been at since I was born, but like my mom pointed out, if I am sick, I might as well be at MGH anyway. I haven't been assigned a permanent primary care provider, but for now am being seen by medical students and whoever the attending is on the day of my visit.
On the not so good side, I was denied for a 2nd (maybe 3rd?) time for social security disability. Which means I hired an attorney and made a request for a hearing. The problem is, it can take months, or sometimes even years from now to actually have the hearing. It is a big stressor in my life, and I am scrambling until I get approved. I am lucky enough to be able to stay with my mom, but the parking and gas to get to and from MGH on a weekly basis is not cheap.
I have been having more shortness of breath with the hot weather. I still haven't had the chest PET scan, or gotten in touch with the doctor who is ordering that for me. I had an appointment with him at the beginning of June, but his office cancelled. I have left a few messages to reschedule, but still haven't heard back.
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| My brother and me right after I surprised him |
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| My friends at the conference |
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