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Life Update

The last month has been a little crazy, some good, some not so good.

On the good side, I surprised my brother for his birthday with a trip to Nashville!  I coordinated with his girlfriend, and walked into the restaurant they were eating dinner at the night before his birthday.  I think he was surprised, and we had a fun weekend together. I hadn't seen him since November.

My room has been painted and cleaned!  Or maybe the other way around, cleaned and then painted.  I am not a neat, organized person when it comes to clothes.  I have too many, and probably half of my clothes are either too big, or too small from all these weight fluctuations.  I gave away two big garbage bags of clothes to my neighbors (3 girls ranging from 14-25, and their mom). I'm still working on decorating, but I love the color!

I also volunteered at a 3 day conference for high school sophomores.  I went to the same conference as a teenager, and met most of my close friends through volunteering. It was maybe too much for me, physically, but I enjoyed seeing a few friends, and seeing the delegates learn.

Every specialist, and my primary care, is now at MGH.  It was hard having to leave my old practice, which I had been at since I was born, but like my mom pointed out, if I am sick, I might as well be at MGH anyway.  I haven't been assigned a permanent primary care provider, but for now am being seen by medical students and whoever the attending is on the day of my visit.

On the not so good side, I was denied for a 2nd (maybe 3rd?) time for social security disability.  Which means I hired an attorney and made a request for a hearing.  The problem is, it can take months, or sometimes even years from now to actually have the hearing.  It is a big stressor in my life, and I am scrambling until I get approved.  I am lucky enough to be able to stay with my mom, but the parking and gas to get to and from MGH on a weekly basis is not cheap.

I have been having more shortness of breath with the hot weather.  I still haven't had the chest PET scan, or gotten in touch with the doctor who is ordering that for me.  I had an appointment with him at the beginning of June, but his office cancelled.  I have left a few messages to reschedule, but still haven't heard back.


My brother and me right after I surprised him


  
My friends at the conference





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