Skip to main content

Life Update

The last month has been a little crazy, some good, some not so good.

On the good side, I surprised my brother for his birthday with a trip to Nashville!  I coordinated with his girlfriend, and walked into the restaurant they were eating dinner at the night before his birthday.  I think he was surprised, and we had a fun weekend together. I hadn't seen him since November.

My room has been painted and cleaned!  Or maybe the other way around, cleaned and then painted.  I am not a neat, organized person when it comes to clothes.  I have too many, and probably half of my clothes are either too big, or too small from all these weight fluctuations.  I gave away two big garbage bags of clothes to my neighbors (3 girls ranging from 14-25, and their mom). I'm still working on decorating, but I love the color!

I also volunteered at a 3 day conference for high school sophomores.  I went to the same conference as a teenager, and met most of my close friends through volunteering. It was maybe too much for me, physically, but I enjoyed seeing a few friends, and seeing the delegates learn.

Every specialist, and my primary care, is now at MGH.  It was hard having to leave my old practice, which I had been at since I was born, but like my mom pointed out, if I am sick, I might as well be at MGH anyway.  I haven't been assigned a permanent primary care provider, but for now am being seen by medical students and whoever the attending is on the day of my visit.

On the not so good side, I was denied for a 2nd (maybe 3rd?) time for social security disability.  Which means I hired an attorney and made a request for a hearing.  The problem is, it can take months, or sometimes even years from now to actually have the hearing.  It is a big stressor in my life, and I am scrambling until I get approved.  I am lucky enough to be able to stay with my mom, but the parking and gas to get to and from MGH on a weekly basis is not cheap.

I have been having more shortness of breath with the hot weather.  I still haven't had the chest PET scan, or gotten in touch with the doctor who is ordering that for me.  I had an appointment with him at the beginning of June, but his office cancelled.  I have left a few messages to reschedule, but still haven't heard back.


My brother and me right after I surprised him


  
My friends at the conference





Comments

Popular posts from this blog

Talk About the Sh*t you Don't Want to Talk About

I haven't updated this blog in a very long time.  I actually deleted a ton of posts while I was applying for social security disability. I posted about Cushing's Awareness day earlier this week on facebook, so I guess I'm in a sharing mood.

Anyway, for anyone who even reads this, I was watching a documentary on Netflix about a teenager with anorexia and mental illness who found meaning in her life through yoga. (It's called I Am Maris). It's kind of the reason for this post.

To start - let's go back to June 2018. My grandmother died.  She lived a wonderful long life, but it was especially hard on me.  She was the reason I got out of bed every day, my best friend, and so much more. I actually don't remember how I got through most of the summer.

In the span of two weeks at the end of August, my mom turned 60, we went on a family vacation to the vineyard, my best friend got married, and I wanted to kill myself.  Yeah, you read that right. The day after return…

Cushing's Awareness Day

Over the past 8 years, I have spent a few Aprils blogging every day for Cushing's awareness.  I will not be blogging daily this year, but don't want to let the month go by without spreading some awareness!


April 8th is Cushing's Awareness Day because it is Harvey Cushing's Birthday.  Harvey Cushing is the father of modern neurosurgery, and he also was the first to discover Cushing's Disease in one of his patients.  You can see a drawing of his patient (Minnie G) in many text book articles about Cushing's.

Cushing's Awareness Challenge - Day 8 - Happy Birthday Harvey Cushing!!!

Today is Harvey Cushing's Birthday, therefore, today is Cushing's Awareness Day.

To learn more about Cushing's, watch this video made by an endocrinologist.



To watch Harvey Cushing in surgery, watch this:




Happy Cushing's Awareness Day!